My Daily Observation – An Update: 2/3/18

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It has been quite a while since I have given an update on my life living with MS so I thought I’d share how things are going.  I know for most of your this type of update does impact you, but I do have followers who live with the disease and I want to encourage and support them in any way I can.

Danny's iphone 696

My first day hooked up – 2011

Danny's iphone 698

The infusion happened over 5 days and they leave this in your arm…

Danny's iphone 700

Finally leaving the hospital – 2011

I have an appointment with the neurologist at the end of March to follow-up on a new medication I am beginning in April.  The medication is called Ocrevus and is an infusion I’ll take every six months in the hospital or doctor’s office.  The initial treatment is administered in two sessions, two weeks apart. At each of these sessions, I will receive 300 mg of Ocrevus over an at least 2.5-hour infusion time.

All following infusions are given as a single 600 mg infusion, lasting for at least three hours, every six months. If I have any ongoing infection, the treatment will be delayed until the infection is gone, then the next dose is rescheduled for six months after the last.

This is quite an advancement because the last time I took an infusion it was Solumedrol IV and I had to the infusion at the hospital for 5 straight days every 6 months or so.

As for my symptoms, they are creeping up on me.  Each day I notice something new and it can be a little difficult getting around, but not impossible.  Honestly, I bite the bullet so to speak and put on a good face in public, but most of the time I am experiencing a relatively high level of pain when I walk.  I don’t really say much to anyone except Evelina simply because everybody has problems and I hate making excuses.

Lately I’ve had issues with my right hip and it makes me wonder if the Solumedrol has something to do with the pain.  One of the most frustrating things of dealing with MS is I never know what is medication side effects and what is a MS symptom.

The issues with my hands still exists and like all other pain I am accustomed to hurting so I just keep my mouth shut and keep trudging ahead.

I have noticed lately that I am forgetting things a little more; absent-minded is how I describe the mind issue.   I’m not sure if it is because I’ve been more distracted lately or if it is a cognitive issue related to MS so I’ll keep an eye on it and report to my doctor in March.

Other than that all is well and for the most part I am focused on what I can do instead of what I cannot.  I learned a long time ago that focusing on what MS takes can be depressing and I make certain to keep my mind focused on finding things I can do and then DO those things until I can no longer.  Then I’ll find something new I can do and move forward positively from new adventure to new adventure.

This fight is a marathon not a sprint and I try to approach it as getting better every single day.   Eating better every day.  Walking the dog every day.  Exercising my mind every day.

Always focusing on the positive….the race to the top begins every morning when I wake up.

Danny

 

My Daily Observation – The Race To the Bottom: 2/2/18

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DannySeth Godin uses a phrase frequently: “the race to the bottom.”   The race to the bottom is much more common than the race to the top and I want to take a few moments to explain my thoughts on how I have decided to structure my life in order to make sure I’m racing to the top.

First, here is what is meant by “race to the bottom.”  In all decisions whether they be personal or professional we all have conscious choices to make.  Those decisions have a direct impact on the results we get in return for our actions.

So when a restaurant decides to make budget cuts and begins buying lower quality products, the race to the bottom has begun.  When a corporation makes the decision to underpay their employees, the race to the bottom has begun.  When a person makes the decision to neglect their health, the race to the bottom has begun.

Any time a decision is made which doesn’t promote a person or organization forward, the race to the bottom principle automatically kicks in and takes over.

Here’s the thing: it is visibly noticeable.

Employees who know they are underpaid feel undervalued and know the company is not aimed up.  They don’t believe in the cause, thus they don’t put their blood, sweat and tears into making the company successful…the race to the bottom.

General contractors who allow employees to cut corners produce a product that is sub-par and the employees know it.  They know that what they are doing is not the right way to do things…the race to the bottom.

When a person knows fast food is ridiculously harmful to their health, but they make the decision to eat these meals on a regular, weekly basis, thus making the decision to neglect their health…the race to the bottom

On the other hand, when a restaurant decides to buy the absolute freshest vegetables, organic and chemical free even if it costs the business a little more, they are participating in the race to the top.

When a general contractor makes the decision to only use the best quality materials he can buy, ensures foundations are laid properly and hires skilled workers even though he or she might have to pay a bit more to ensure corners are not cut, he or she is participating in the race to the top.

When an individual decides to eat healthier, read more than watching television, invest time in their family, go for a walk in the evening for a little exercise, that person is participating in the race to the top.

I implemented an exact plan with exact habits of which I adhere to religiously and I did so in order to participate in the race to the top.  At work I respond to emails immediately in order to participate in the race to the top.  I return phone calls within an hour so that I am racing to the top.

At home I take the time to buy Evelina flowers and honor our date night so that we are racing to the top.  I work to watch my tongue and not speak ill of others so that I am racing to the top.  I demonstrate loyalty to my friends so that I am racing to the top.

We all have choices and a decision to make: do you want to race to the bottom or race to the top?  And in which direction are your actions aiming you?

Danny

My Daily Observation: The Skill of Selling Snake Oil – 1/30/18

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DannyThere is this odd relationship that has always existed in our world: people who want something, but don’t want to commit to the time it takes to gain success, and people who  capitalize on those people’s willingness to take shortcuts in order to sell them something.   I call the latter the snake oil sales people.  They take advantage of unsuspecting people making claims that the product or service of choice is going to wash their troubles away.

“Buy this electric ab belt and have the body you’ve always wanted!”

“This concoction of herbal supplements can cure MS!”

“Rub this on your feet twice a day and no more plantar facsiitis!”

“Buy this golf club and you’ll hit longer, straighter drives than you could have ever imagined!”

And people buy, as they always have, the products don’t produce and the buyer is left disappointed.  But I want you to think about WHY the buyer is disappointed.   Of all the reasons the buyer has remorse, way down deep inside they truly had the desire to get what it was the seller promised; they simply wanted a shortcut.

The buyer wants to have the body they see on the ab commercial.  The sufferer wants a cure for MS or plantar facsiitis.  And that golfer wants to hit the longest drives of his life.

Let’s face it, I want Flex Tape to work, but if you read reviews you’ll see that buyers have remorse.

Here’s my point: the snake oil salesman knows something you don’t which is why so many people fall for these gimmicks.  They take advantage of a biological fact.  They tap into the emotional part of your brain called the Limbic system.  In marketing we aim everything at this part of you that you don’t know you use to spend money.  The Limbic system supports a variety of functions including emotion, behavior, motivation, long-term memory and smelling.  A large part of your emotional life is stored in the limbic system and it is this part of your brain that makes decisions “feel” right.  It is also the part that influences purchasing.

Image result for electric ab beltThe limbic system doesn’t function on words and data, but on imagery.   And it is this part of the brain that the snake oil salesperson strikes because they know if they can learn to paint just the right emotional image in your mind, then they can get you to buy what it is they are selling.  And then there you are at home standing with a vibrating belt around your waste looking silly.

Here’s the cool part…you can take advantage of your own limbic system.  What if you started painting your own images in your mind?  What if you could get yourself to buy your own awesome story?

What if you became your own snake oil salesperson?  But instead of trying to sell yourself on the idea that a shortcut exists, you sell yourself the idea that with just one simple step in the right direction, you can change your own life?

Danny

My Daily Observation: Know Your Value – 1/27/18

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DannyBeing “picky” is simply knowing your good enough to deserve something great.  There are times in life when people settle for less than they deserve only because they might not realize or understand their value.  People remain in bad relationships, settle for unappreciative employers and compromise when they don’t truly understand the value they bring to the table.

The situation I believe demonstrates my point best relates to employment, so let me paint a picture for you.

Let’s say Jane has worked as a customer support specialist for a retail store for 6 years.  During that 6 years Jane has developed the ability to overcome any and all difficult customer situations and often has the customer leave happy and ready to return on future visits to continue to shop and spend money with the store.  Simply put, Jane is exceptional at what she does.

The retail store has offered a few small raises here-and-there, but has a cap on what they are willing to pay customer service employees like Jane.  Not only that, but Jane is expected to work countless hours of overtime, unpredictable weekly schedules and every holiday and weekend.  This situation could make Jane feel that her worth is equal to the cap her store has placed on employees who perform customer service and she might easily adopt the mental perception of herself that her value is in direct proportion to what her company is willing to pay.

Then along come 2 other companies who place a tremendously high value on customer service and become aware of the incredible job Jane does on a daily basis.  Both of these companies are willing to offer Jane a 50% pay increase and a signing bonus.  Her schedule would only require her to work 2 weekends per month and her weekly schedule would only require her to work 8-5 on weekdays and she would be off on all major holidays.

These offers stagger Jane as she never believed nor understood that her particular skill set had tremendous value in the market.  Not only is it the skill set these companies appreciate, but it is also the person who Jane is and they respect her dedication and the fact that she loves customer service so much.  Simply put, these 2 companies see high value in Jane first, and then they see value in Jane’s ability to provide high levels of customer service.  Once Jane realizes other companies see value in her, her eyes become open to the value she should see in herself and she’s no longer willing to accept “less than” any longer.   She can now be picky in her choices of employers because she recognizes her own value and is no longer willing to settle for a company that doesn’t also recognize that value.

Here’s the cool thing: when you know your value you do not ever have to settle.  When you understand the particular skills you possess and the value those skills have in a market, then you have options, which means you can be picky.

Be picky and don’t settle; don’t ever, ever settle.

Danny

Let Me Ask You a Question – 1/25/18

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Let me ask you a question:

Would you rather be locked in a room that is completely dark for a week or a room that is ridiculously bright for a week?

My Daily Observation-You Can Live as a Cause or You Can Live As An Effect: 1/25/18

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DannyStress is defined as “a state of mental or emotional strain or tension resulting from adverse or very demanding circumstances.”  The adverse or demanding circumstances do not occur within you, but are a reference to things which happen around you or to you.

I’ve been dealing with a couple stressful situations lately that are impacting me adversely.

Here’s the kicker: all of the internal stuff I’ve allowed is 100% my own doing.

I view stress as an external thing that I allow myself to then internalize.  I have the option to control what my mind dwells on and what it does not dwell.  Stressful situations happen AROUND you not inside you.  What occurs inside you are the thoughts and emotions about the situation.

What has happened to me is I have allowed the situations in the physical world to get inside my body which then manifest themselves as tight shoulders, headaches, anxiety and stress.  And it is 100% my own doing.

To combat this I am beginning meditation.  I will sit for 15 minutes or so each day in the middle of my day when I begin to feel my mind trying to enter into what I call “The Fear Zone”.   I will then sit quietly until my mind quiets and empties.  Then I continue with my day.

I think it is important for us all to realize we are in control, not our surroundings.  You do not have to live with a mind that controls you.  You do not have to live with anxiety.  You do not have to accept that “this is just the way I am”.

You have the option to decide to take control.  Or you have the option to continue on as you always have feeling helpless and living as an effect instead of a cause.

Danny

Let Me Ask You a Question – 1/24/18

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gce5rz8mi

Let me ask you a question:

What inanimate object would be the most annoying if it played loud upbeat music while being used? (once again, keep it clean.)

My Daily Observation: 1/23/18

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DannySo often bloggers email me with these grandiose dreams of growing a blog to have millions of followers and hundreds of comments each day.  That all changes when we get into the discussion about the volume of work I committed to in the early years.  When I explain to them that in the early years of blogging I would read 500 blogs each day (250 in the morning and 250 at night), the reality hits them and quickly their enthusiasm wanes.

Why is it that people are rarely interested in putting in the work?  Wanting the end-result is easy.  Wanting to be a CEO is easy.  Wanting to fly on private planes is easy.  Wanting to travel the world is easy.  Wanting to retire at 40 is easy.  But the hard work and years of dedication required are not easy.

It is also easy to look at the end result and say “Man, is that lady lucky.  Must be nice spending all day at the spa and living in that nice house while driving around town in that Ferrari.”  What people don’t see are the sacrifices people make in order to get what they want.  Mark Cuban lived in a 2 bedroom apartment with 6 other guys for many years eating ketchup and mustard sandwiches; for years mind you.

There are no shortcuts.  Life owes you nothing.  There are no guarantees that hard work will pay off, but I know what being lazy produces so I’ll take my chances with working hard.

My Daily Observation – Jealousy Is the Root of Gossip: 2/21/18

DannyThe enemy comes to steal, kill and destroy.

It never ceases to amaze me how humans act when they see others getting ahead or getting more.  The neighbor who buys the new luxury car which leads other neighbors to begin gossiping about how they can afford such things.  The member at church who shows up wearing a new fancy dress which leads other members to begin talking and speculating on why she’s wearing that dress.  Why is talking about others so natural for some human beings?

Maybe it’s jealousy or envy?

Why can’t people mind their own business and focus on their own issues and tribulations?  Why can’t people focus on their own business?

My favorite is when others then venture out to spread their venom in the form of gossip.  They spread from person-to-person like the plague talking about something that does not pertain to them in the slightest.  “Did you see what Beth wore today?”  “Did you hear that John got a raise?”  “Well I heard they can afford that new fancy car because Joann just came into some money.”

Jealousy is the root of gossip.

Sometimes the gossip is innocent, but then there is the spiteful, vengeful, evil “innocent” gossip which is spread by someone whose primary mission is to destroy.  These people are some of my least favorite and I categorize them with narcissists and manipulators-avoid at all costs.  These people have venom in their souls and they seek to use any morsel of truth to spread misinformation with the intention of burning and destroying others.

Sometimes you learn the hard way that you can trust no one.  Keep your own business close to yourself and protect even the slightest of details.

Danny

It is fine… – Cyranny’s Cove

This is a reminder list for me, for new bloggers who are looking for advice, and for established fellow bloggers who need a little pat on the back. It is fine… Not to post anything, if you do…

Source: It is fine… – Cyranny’s Cove

Wattpad

An African's Adventures & Much More

What is Wattpad? Wattpad is a site for new writers, as well as people who just want to read books. It’s a site for everyday people who either aren’t confident enough to attempt writing actual novels and getting them published, but its also a site for people who just want to write for the hell of it, that don’t take it seriously and want to publish a couple of poems or a short story. It’s also great for people who don’t want to spend money buying books, but the downfall with that is that not every book on Wattpad is fantastic, some are written by 14 year olds, resulting in grammatically incorrect books, or just round terrible books.

In all honesty though, some of the most hilarious and well written stories I have read, have some from Wattpad. It’s the thing that encouraged me to start writing, and as embarrassed…

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Happy 91st Birthday Sidney  Poitier – Waldina

Today is the 91st birthday of the actor Sidney Poitier. Read his book, watch Guess Who’s Coming To Dinner. The world is a better place because he is in it. NAME: Sidney Poitier OCCUPATION: Film Act…

Source: Happy 91st Birthday Sidney  Poitier – Waldina

Gulab Jamun Recipe | Utterly Whims

Hello friends, today i will share a yummy dessert “Gulab Jamun” Recipe. Isn’t your mouth watering? Obviously this happens to everyone as it is the most beloved dessert. Though thi…

Source: Gulab Jamun Recipe | Utterly Whims

Have You Landed a #Job Interview Yet? Check Out 10 Common #Resume Writing Mistakes to Avoid.

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via Have You Landed a #Job Interview Yet? Check Out 10 Common #Resume Writing Mistakes to Avoid.

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