33 thoughts on “My MS Story

  1. I am going through plantar fascitis now and that is really painful. I am still walking although first thing in morning is the worst from the swelling so I can relate to massive pain that keeps you from being active. I wouldn’t wish that on anybody. It’s getting better but I know yours is far worse. Thanks for the video.

    1. Pain is pain. I try to avoid the trap of degrading someone’s experience in comparison to mine because there is someone around the corner with a far worse condition. It sucks to live with any pain. πŸ™

      1. I can’t really complain because it was far worse before the cortisone shots. But I’m recuperating. I’m just empathizing to your pain. Keep it up with your very positive outlook.!

    2. I spent a couple years with that about 10 years. Very very painful. It was recommended by my father to wear New Balance tennis shoes. There was something about the arch in them that put your foot in the right position. I ran out and got a pair and lived in them. It worked. It got better. I still wear them. Regardless, it usually heals over time if you’re careful. Good luck.

      1. Great. I hope they work.When I had it I had to stand 12 hours a day. It was rough. I don’t remember it going awaybut it eventually did. I hope yours is better soon.

    1. Totally irrelevant, but I often use the phrase “cool beans!” I don’t hear it very often. Maybe it’s a geographic saying. I grew up on the east coast.

  2. I really enjoy your videos, Danny. I think it’s good to educate people about MS and other health conditions described by real people going through it daily. Many of your symptoms and even some of the meds such as taking Gabapentin are eerily similar to my battle with CM. Btw, Ft. Myers is 30 mins away from me. Keeping you in my prayers and stealing some of your positive vibes! πŸ™‚

  3. I appreciated hearing the MS part of your story in greater detail, Danny. Turns out the very month your diagnosis was confirmed was when my cancer diagnosis was as well. I’d been diagnosed with fm a year prior. After multiple surgeries to deal with cancer treatment complications, there is chronic painful nerve damage that interacts negatively with the fm, leading to me having to stop working. (I was on Lyrica too, but found the side effects were not better than doing without it.) I mention this because of the overlap with what you say in the video about being unable to commit in advance to activities, and coping with isolation. As for said coping, though, things are looking up tremendously!
    Thanks again for telling your story.

    1. Thank you Katherine for your story as well! The isolation is tough to deal with because it’s not as easy as “just leave the house” as some would probably think. And as most experience, isolation is a short walk from depression.

  4. I just came across this post, reblogged by Don Massenzino. I had to look twice at the picture, because I thought i was looking at myself! The similarities caught me off-guard! I was diagnosed with MS fifteen years ago, and am now a wheelchair user. Author first. No, actually husband and father first, but you get the idea. I have been considering talking about my MS in more depth on my blog, and I think hearing your story has helped make my mind up to give it a go!
    Really enjoyed watching the video (if that’s the right word), and I hope to make contact with you more in the future. πŸ™‚

    1. Hello Steve! It is great to meet you and I appreciate the kind words about my video. It is always nice to meet others living with MS to help share in the support of each other. I have connected with you on your social media links and look forward to reading your story on your blog!

  5. I decided to look a bit more into you and I understand now why I was drawn to what you wrote on the other blog post. I believe everything happens for a reason. There is no luck, no chance and no miracles. There is only cause and effect – or you reap what you sow if you’re Christian. Most people don’t take that seriously. It also applies to the people you meet. Some come in and out of your life in 5 seconds and some end up meaning more. Like you said in your video – your illness changed you. You used to be more negative. Now it was up to you to change your perception of life. This makes your illness a benefit. Probably in many more ways, too. There is a reason you became sick. A reason it would be hard and useless to figure out why, but it is what you do with it that counts. The people you help, because when you say you understand – you do. These are good causes you make, and for every cause you make there is an effect. As more life goes by, the changes you make raises your life condition – your mood – to make it easy – and as life affects you, your life conditions determines how you react to it, and that cause also has an effect. So the higher your life, the better your life becomes. The MS becomes the catalyst for change. This is why the attitude about obstacles.matters so much. If they get you down or you give up. you pass up an opportunity – a gift. We all carry karma. We have all done good and not so good things. We constantly face the effects but many feel like a victim and feel they go through things they don’t deserve. But they don’t understand. I, too, have had a very hard time medically. I should be dead and I’m not. I started to seriously study human nature 30 years ago to understand myself. I know now that when I make a sincere determination to change or fix something in my life that I will be hit with a kingsize obstacle to try to stop me, and to see if I’m serious. The obstacle tells me I’m on the right track and it is something that matters. The obstacle is the proof of cause and effect. The human mind is much more powerful than we give it credit for. There is a saying. “Be master of your mind. Don’t let your mind master you.” The most important thing I haven’t said is – how do you do that? Have a good weekend!

    1. Great comment! I agree with everything you have said about how you choose to view obstacles. Your mindset determines the route your life will take. Overcome the obstacle and your life takes on completely different meaning.

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