Lessons with MS: Telling people

This is Dinosaurs, Donkeys and MS!

Dinosaurs, Donkeys and MS

Me and Dizzy have been thinking about people recently. In particular, the dilemma of whether to tell people, or not to tell people when you’re diagnosed with a chronic condition.

dizzy-on-bed

I kept my MS a secret from most people until very recently. I think the main reasons for me was the worry of being judged. Of people seeing me differently, not as capable, able or reliable anymore. There was also the dealing with people’s reactions. I still don’t understand why people feel the need to always go ‘I knew someone with MS…’ and then either ‘they’re in a wheelchair’ or even better, ‘they’re dead now’. That’s always just great to hear… It’s also easier not to say anything and just to carry on as though everything’s normal. Because it’s not just the worrying about how people will react it’s the also telling part. When is a good time to come out…

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