It has been a minute since I updated everyone on the MS front so here goes. I have been off all my medications for about a year. I will take the occasional pain pill, but I try to limit those because they are dangerous. I stopped taking my injections of Copaxone in May of 2016 simply because I was worn out from giving myself an injection 3 times per week for nearly 3 years.
Without the medications I simply have to tough it out. It isn’t easy, but I prefer the pain to all of the side effects of the pills. I’m not sure which is worse, MS or the medicines used to treatment MS.
My two primary symptoms that I deal with are fatigue and lightning flash pains. The fatigue I manage as best I can and have learned to rest a lot on the weekends. There are still times when I am asleep at night before 9. I joke with Evelina that I’m just getting older and eventually you’ll find me at the cafeteria at 4:45 pm eating dinner.
For my fellow MSers you understand the flash pains. They are the ultimate in shooting pains in my hips, legs, elbows and hands. They hurt pretty bad, but it’s nothing I can’t handle. Like I said, for now I’ll deal with them versus taking carbamazepine.
All-in-all I cannot complain too much. I am sure there is someone in this world who would gladly switch places with me. Isn’t life funny like that? We think we have struggles until we read the story of someone who is fighting an incredible battle.
I hope everyone takes time be thankful for the simple pleasures of being able to walk. It it so easy to take it for granted.
I know a lot of my readers suffer from chronic pain and I try to be an example of how to fight back. Today I went for a quick walk. I didn’t want to and my body yelled at me every step of the way, but I know I have to do it. I look at exercise like this…if I don’t force my body to move, then MS wins. I know a lot of you don’t exercise because you have told me so. You have said it hurts too bad. You have said you are too tired. I get it.
I almost had to call Evelina to come and get me, but I didn’t. I willed myself to finish what I started because in the long run it will benefit me more than sitting around doing nothing. Do you think I want to? No, I would rather sit and do nothing.
To those who tell me they cannot I would challenge you to begin thinking about what you can do instead of what you cannot do. If you can only walk to the end of the driveway then do so. If you can do arm lifts from your chair, then do so. If you can swim in the pool, then do so. Do what you can do, but don’t settle for doing nothing.
And it begins by putting one foot in front of the other.
A few of my blog friends have inquired about my life living with MS and how I have felt lately so I thought I would tell the world. For those of you who are not aware I was diagnosed with MS in 2013, but have lived with the symptoms since 2007.
Life is good right now and I can say that my symptoms are manageable, but not absent. It is a good thing that the brain gets accustomed to some of the pain. My legs are still numb and burn daily. My hands hurt and I still get the stinging flash pains in my joints. I can say I am currently off of most of the meds while I try to deal with the pain through will power.
As most of you know I am no longer operating my business and have taken a job at a local newspaper as the digital specialist. The job is going well and gives me the freedom to move a bit. One of the most annoying things about my MS is I cannot sit for too long nor can I stand for too long so I am constantly moving or shifting to offset the discomfort.
For the most part life is going well for Evelina and I and I appreciate the emails inquiring about my health. It does mean a lot to us to know that so many of my blog followers think about me and take the time to ask. And for that I say a hearty THANK YOU!!