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A few of my blog friends have inquired about my life living with MS and how I have felt lately so I thought I would tell the world. For those of you who are not aware I was diagnosed with MS in 2013, but have lived with the symptoms since 2007.
Life is good right now and I can say that my symptoms are manageable, but not absent. It is a good thing that the brain gets accustomed to some of the pain. My legs are still numb and burn daily. My hands hurt and I still get the stinging flash pains in my joints. I can say I am currently off of most of the meds while I try to deal with the pain through will power.
As most of you know I am no longer operating my business and have taken a job at a local newspaper as the digital specialist. The job is going well and gives me the freedom to move a bit. One of the most annoying things about my MS is I cannot sit for too long nor can I stand for too long so I am constantly moving or shifting to offset the discomfort.
For the most part life is going well for Evelina and I and I appreciate the emails inquiring about my health. It does mean a lot to us to know that so many of my blog followers think about me and take the time to ask. And for that I say a hearty THANK YOU!!
As most of you know I live each day of my life with multiple sclerosis. My type of MS is secondary progressive which means that I have symptoms present daily with no remittance. I take it in stride understanding that there are many people worse off than I, therefore, I focus to stay thankful. With that said, the daily effort required to deal with this disease is great and the attention and love my wife shows me is even greater.
In my post My Life Living With MS, I talked about the fact that Evelina is my angel, my support and my strength. I am not sure what I have done in life to have her at my side, but I am greatly appreciative!!
Each day my wife assists me with a few simple tasks with which I struggle, tends to my medications and vitamins, prepares meals and reminds me of all the things that I forget. The job is truly a never-ending burden and she simply goes about her day with no complaints, which I find amazing.
Now that I am working a new job Evelina makes sure I have clean clothes and new ties. She keeps me organized and focused to take things with me that I will need throughout the day. Any success I find in the future at my job at the newspaper will be because of her. And for that I will be forever grateful.
So to my wife I say I love you, I appreciate your burden of love and you will always be my beautiful. My words will always fall short of expressing my feelings, but I hope you always know what you mean to me. Thank you for making my Dreams come true, I love you to the moon!
I had a question posed to me this week: how are you always so positive considering you have secondary progressive MS? Well the truth is I don’t live my life in a continuous state of positivity. I write a blog that focuses on learning how to transform oneself from an under-achiever, non-doer into a person of organization, purpose, plan and action; full of desire and ambition. It takes a lot of work to remain positive.
Honestly, I am more positive now in life because the alternative is not acceptable. I will not allow myself to go to the dark side and focus on how crappy life can be, how crappy people can be, how I hate my job, how life just keeps putting it to me. I just refuse to allow my mind to think it those terms.
Why? Because I choose to focus very little on the negative, while focusing heavily on the positive as I work toward achieving my goals.
This does not mean I am not aware of the negatives. I do not live my life with my head buried in the sand. I simply will not allow myself to use valuable life energy to focus on negatives. It is not productive, thus I find productive things on which to focus.
It is not easy and takes much effort to live a life focusing on the positive. Part of me wants to give in and just become negative. I do not talk about my MS, too often. I do not complain about my MS pain, too often. I do not complain about not playing golf anymore, too often. I do not complain about having to take my Copaxone shot 3 times per week, too often.
I think many people would understand if I did complain. AND I know a lot of chronic sufferers that complain incessantly, most of whom I give a hall pass because I know what it feels like to hurt. But I will not give in. I will not relent. I choose to fight. I choose to stay positive. I choose my mentality. I choose my future!
I am positive because it is the one thing I get to control.
To those that live a life of negativity I say: suck it up buttercup. I bet there’s a kid in a third-world country that would give a limb to switch places with you and do it without hesitation. We have it easy in civilized societies; we are so incredibly spoiled. Most of us suffer from first-world problems and act as if the world is coming to an end.
We don’t have to walk 5 miles one way to carry back dirty water to our families. Water that will kill millions of kids each year. We don’t have to worry about polio, AIDS, diphtheria, measles, deadly enfluenza, lions, tigers or bears! Seriously, the next time you start complaining, stop and listen to yourself. What are you complaining about? Take action, change your position, change your future. You have the freedom to do so.
You ARE the answer to your own problems; start acting like it.
Why do I choose to remain positive? Because I live in a country that allows me to write a blog to help others. I live in a country where I can speak to MS patients and let them know someone cares. I live in a country that allows me to turn my life into whatever I want it to be.
Why do I choose to remain positive? Because when all is said and done, my life ain’t that bad!