Swimming-water therapy for multiple sclerosis | Multiple experienceS

I’ve have a MS fitness trainer that I’ve been working with for about a year and a half now. She would come to the house and get my body to move in ways I personally wouldn’t willing force my body to…

Source: Swimming-water therapy for multiple sclerosis | Multiple experienceS

My disabling MS attack in 2014 | Multiple experienceS

It wasn’t always a battle. I remember at 40 I was still walking pretty good. I’d have a limp every now and then, when my legs were tired, but an outsider would never know. I’d have occasional bathroom…

Source: My disabling MS attack in 2014 | Multiple experienceS

A Quick Update For Those Who Are Interested

Featured

Danny

A Quick Update For Those Who Are Interested…

For those of you who saw my post last week, I had to go to the doctor due to some digestive issues and was diagnosed with Ulcerative Colitis.  Simply stated, UC is a condition close to, but not the same as, Crohn’s Disease.

The day after my diagnosis Evelina and I immediately cleaned our cupboards and began to completely restructure our diet.

And before I get too deep I want to say a huge thank you to all of you who PM’d me on Facebook, emailed and commented with words of support.  It means a ton to me and I don’t take you for granted.

I have to be careful in my food choices as anything with a lot of fiber content cause intense stomach pains.  At times the pain feels like tons of stabs in my stomach.  Thus far I have discovered I can have eggs, enriched yellow grits and enriched White Mountain bread from Publix.  For lunch I’m eating chicken breast with zero spices and a baked potato without the skin.  Dinner usually involves fish with avacado and cabbage or something similar.

You can see the list of what I cannot eat here.

This food change is going to be a huge challenge, but things could be worse.  After two weeks I must admit my palette is changing already and things that tasted bland before are tasting great now.  The other eye-opening experience has been exposure to the under-world of dairy substitutes.  I had no idea that there were so many non-dairy food types.  Holy cow!

Last night we tried gluten-free taco wraps with fish, avacado and cabbage slaw using a gluten-free mayo.  The wraps were so bad we will be returning those to the store.  And as you guessed, we ate our fish tacos without taco shells; which sucked.

Last week I had an appointment with a client to discuss his company’s marketing campaign and we decided to take a break and grab lunch.  I decided to have grilled shrimp with no spice and a baked potato and the shrimp killed me.  So needless to say shrimp is off my list for now and unfortunately that is how I figure out what I can and cannot eat.

Eventually I hope to come up with 3-4 food options for each meal of the day, but until then eggs, grits, chicken and baked potatoes it is.  Hope everyone has a great Saturday!

Danny

My Most Recent Health Scare Is No Joke

Featured

Danny

My Most Recent Health Scare Is No Joke…

It has been just over a week since I wrote anything and there is a good reason.  On Monday, 4/16, I had to have a colonoscopy conducted to check out some digestive issues I’ve been having for a couple months.  I thought I had some type of infection or bacteria due to some of my symptoms.

Once the procedure was over and they eliminated the possibility of cancer, I was informed that I have an incurable form of colitis, which is an infection of the large intestine.

The frustrating part of this deal is that I must manage the condition through my diet and the food restrictions are intense.  For instance, I cannot eat the following:

  • breads
  • cereals
  • pastas
  • noodles
  • macaroni
  • brown rice
  • quinoa
  • buckwheat
  • oats
  • wild rice
  • walnuts
  • hazelnuts
  • pecans
  • cashews
  • almonds
  • macadamia nuts
  • peanuts
  • pistachios
  • sesame seeds
  • flax seeds
  • millet
  • pine nuts
  • sunflower seeds
  • pumpkin seeds
  • wild rice
  • all beans, including chickpeas
  • adzuki beans
  • soy nuts, including soybeans and edamame
  • raw fruit
  • dried fruit
  • fruit that has seeds that can’t be removed (like most berries)
  • vegetables that have a skin
  • veggies that have seeds
  • raw veggies
  • dairy
  • corn
  • sulfides or sulfates
  • anything containing gluten
  • caffeine

And these are just a few of the things we have discovered thus far.  My doctor tells me that I’ll spend the next few months eating things in order to discover if it causes a flare up.  If it does then it goes on the banned list.

As you imagine I simply cannot eat out and if I do I have to eat plain chicken breast and green beans.

This is going to be an enormous challenge.  Evelina does our grocery shopping and it takes forever because we have to read every single ingredient on anything we buy.  A couple nights ago we went to Whole Foods and bought $50 worth of groceries.  That took us over an hour.  I guess what I’ll have to do is find the top 10 things I like and can eat and just stick to those to speed up this process.

All-in-all things could be worse I suppose.  I don’t have cancer which is an obvious relief, but the thought of dealing with this for the remainder of my life is a bit of a let-down to be quite honest.

Danny

For the Love of Food: Foods That May Be Helpful For Fibromyalgia Week 3

Reclaiming HOPE

This week, we continue re-visiting the For The Love Of Food posts….

Collage of food with text overlay: For The Love Of Food: Foods That May Be Helpful For Fibromyalgia (And Are Good For Us All) https://reclaiminghope.blog

For the last couple of weeks we’ve started taking a look at some foods that may be helpful for fibromyalgia. If you missed the first two posts, you can find them here and here. I’m highlighting some foods because of the specific nutrients they contain that may help with fibromyalgia, but these are definitely just some of the foods we may want to include in our diets (and whenever I reference diet, I’m just talking about what we eat, not a specific diet). A healthy diet should include a variety of foods. As I mentioned in For the Love of Food, we don’t yet understand how food works synergistically in our bodies to give us all the nutrition we need, and our best bet for getting those nutrients is to eat an array of real foods, foods…

View original post 646 more words

Circulatory issues possibly Raynaud’s Syndrome

Circulatory issues possibly Raynaud’s Syndrome on Multiple experienceS | So I went to the podiatrist. As soon as he looked at my feet the first words he said…

Source: Circulatory issues possibly Raynaud’s Syndrome

Fall potentially dangerous

Tessa Can Do It! Positivity is Catching!

I fell this morning. I caught myself on my bed wrenching my back, but at least I hit the bed and not the other furniture or the floor itself. My balance is definitely an issue.

We just had a pretty heavy snowstorm. My dad and son dug us out.

My bankruptcy court date is April 16th in a town I detest, Camden NJ. Not a good town to be in. All of this for about 5 minutes before the judge most likely. I know it isn’t long. Hopefully no one wants to sue me and make me hire my attorney at attorney fees. It didn’t happen last time and hopefully won’t happen this time. You can file, but that doesn’t mean the creditor has to accept it. It really isn’t worth their time because they usually don’t win. I have nothing to pay them with, but it will cause me…

View original post 148 more words

This Blogger Is (Temporarily) Out Of Order

Being Lydia!

I have tried to start close to a dozen posts over the last week or so and they don’t get very far.

It isn’t that I have writer’s block as the ideas are readily there. It is more that my brain just can’t put them into any semblance of order. The reason is, and I really hate to admit this, I am in a deep and dark depression.

There are events that have added to this (the 24th and 5th anniversaries of my Mother and Father’s passing, respectively), but I believe the real source is that I have just been dealing with too much pain for way too long.

While I have had small bouts of depression, and even hypomania (a lesser form of mania), I thought I was immune to it. I thought I had my emotions under control and was stronger than any mood swing that could ever come…

View original post 110 more words

Pictures of what makes me happy | Multiple experienceS

I’m happy to say I’m all done with Ocrevus for six months. I just have to deal, of course, with the side effects from the steroids. I have to be honest too, these medicines and these infusions mess…

Source: Pictures of what makes me happy | Multiple experienceS

No Ocrevus infusion again more insurance issues

I have no words. I’m so frustrated that the only thing I could do was cry. My insurance made some error and terminated me on one of their systems. I knew…

Source: No Ocrevus infusion again more insurance issues