Another Hospital Trip, Another Purple Dress

h048017_13Daily Prompt – Better

I am late to the party on this daily prompt word (it is from Saturday). However, when I finally checked it I couldn’t resist as it is the perfect word on so many levels.

  1. On Friday at 2:20 pm (exactly 2 hours late), I was wheeled into the operating room for my hernia repair. The on-again-off-again-on-again surgery was finally happening. Since I only had around 48 hours notice, I was feeling better about it – not so much time to stress out.
  2. Much of the stress I was feeling about moving also melted away with the surgery. I can’t lift for 2-6 weeks and we are going to be in our new place two weeks from today (Saturday). I have packed about all I can and now I just leave it in the capable hands of Hubby, friends and, of course, God.
  3. I was able to handle…

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Dizzy, MS and possible redundancy…

Dinosaurs, Donkeys and MS

Me and Dizzy had abit of a stressful week last week. For the first time we’re facing possible redundancy and it’s got us thinking about employment and MS.

dizzy-work

Having MS has always made me feel vulnerable when it comes to work. I’m one of those people that worries far to much about letting people down and I’ve always worried what my employers would think. Would they think I was too unreliable? Not fit for the job? This is partly why I kept my condition a secret at work until recently. As it turned out they’ve been amazing about it! 🙂

Loads of positives have come from this and it’s made me feel so much more secure in my job. Until this. First I sat and worried about whether my condition would effect their decision and then I also started worrying if I am made redundant what do you tell people at an interview?! I know it’s illegal…

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Rocking Motherhood in 10 different ways – despite chronic illness

Gallery

This gallery contains 6 photos.

Originally posted on Tripping Through Treacle:
When I saw that Natalie from?Surviving Life’s Hurdles?tagged me in a post about ‘Rocking Motherhood’, I felt both flattered and a bit nervous. ?If you ask my husband, one of the biggest things that…

New diabetes pen has sugars all over…

Advocate for Mental and Invisible Illnesses

It is called Tanzeum. I was wrong with the name the other day. They decreased my oral meds and said it will take a couple of weeks to settle down. I was only 74 the other day than today it was 159. Crazy.

Got my new diabetic shoes. Took forever. The smallest pair is too big for my feet. She had to rig them to fit.

Teresa (Tessa) Dean Smeigh

-Advocate for Mental and Invisible Illnesses

-Author of Articles, Stories and Poems

http://www.tessacandoit.com

http://www.finallyawriter.com

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I have issues

I have issues on Multiple experienceS | My daughter stepped on the scale and was 5-6 pounds lighter. My daughter, who is normal and not obsessed with the…

Source: I have issues

A Missed Opportunity

Voting

Today was a first for me. It was the first time since I turned 18 that I didn’t vote in an election, whether National, Provincial or Municipal.

I don’t think of myself as political in any way; however, I have always believed that it is our right and our duty to educate ourselves and cast our ballots for those whom we think can best lead us. For me NOT to vote is not something I feel good about, but at the same time, I need to look after myself.

Today, May 9th, 2017 is the British Columbia Provincial election to decide which party and leader will be in office for the next four years.

It is really my own fault that I was not able to get my vote in. Last Wednesday I got a call that my hernia surgery for that Friday (May 5th) which had been canceled 10 days…

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Counting My Spoons

Tripping Through Treacle

Many people with a chronic illness will have heard of the ‘spoon theory’; the idea that you start your day with X number of spoons (i.e. the energy needed to complete a task) and that every activity in your day uses those spoons up. It goes something like this :

Start my day with 12 spoons

1. Wake up and have a shower uses 1 spoon

2. Getting dressed, doing hair, putting make up on uses 2 spoons

Showering and getting ready is exhausting; for many people with MS, including me, the warmth of the water exacerbates symptoms. I love baths but they are a distant memory for me now, due to the adverse effect they have on my legs. My shower stool is my friend.

I usually try and rest for 5-10 minutes after my shower to allow my legs time to rest. Obviously, this is not always possible…

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A Condo With A View – A Natural Stress Relief

Being Lydia!

View

This is the view I can wake up to every morning by the end of next month! And it won’t always be cloudy!

Yes!!!!! The hunt is over and we have a new home. The search is over and we take possession of our third-floor corner condo on May 19th. This was the first place we put an offer on but lost out to another bid. The subjects were not cleared by yesterday so we had a chance to resubmit and this time they accepted it immediately.

The news that it was again available came as we were standing in the middle of a townhouse (my preference on “style”) that was older than our current place, had a great price but needed a ton of work. We had seen 6 open houses just yesterday and they ranged from too much work to too much money. A couple of places that…

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5 Things I learned from my trip to Florida, as a person with a chronic illness

Tripping Through Treacle!

Tripping Through Treacle

Some of my regular readers will know that I have recently been on a two week holiday to Florida with my family – my two kids, my husband and my parents.  It was a long awaited trip (the kids have been asking every week, ‘how many days is it until Disney?’, for the past year), with the plan being that we would stay two hours from Orlando on the beach and take a few days out for the Parks.  I had been looking forward to the trip with a mixture of excitement (my first long haul trip since my wedding 11 years ago!) and trepidation (how will it be for me, as a relatively newly-disabled person?).

Well, the holiday was fab; I am now one shade darker than milk-bottle white and had a lovely, relaxing time (for the most part).  Watching our kids have fun, spending most of their time…

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“A Random Act of Christmas Kindness”

I love following Being Lydia!

christmastreeThe blogosphere, and the world wide web in general, have opened up a whole new way of meeting people.

Through my blog, I have “met” and friended so many of you. And I have made contacts as well through blogging groups. I joined Chronic Illness Bloggers, where I met other bloggers who have similar circumstances as me. One of those people led me to another group “Invisible Illness Awareness Worldwide”.

And I can’t forget Twitter. I started following anyone who was dealing with any aspect of chronic health. There, is where I met Jess.

Jess Trigwell is a young woman from Hailsham in East Sussex, U.K. She is a wife and a very loving Mom of a young boy. Jess also has fibromyalgia – but like she says on her Twitter page, “It doesn’t have me.”

I will let Jess tell you in her own words the significance of this post’s title.

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