Cog Fog and Brain Zaps?!

Tripping Through Treacle

I continue to be off work for the time being, awaiting my Access to Workreport regarding adaptations and aids that may support me to remain in work. All this time off has done the world of good for my MS, I have to say. Unfortunately, I can’t say that my symptoms have magically disappeared, but Ihavefound them a lot easier to manage, as I have had the time to rest, sleep and stretch as much as my body needs to. Whether it is because I have had more time on my hands to think, or because they have been changing, I am unsure, but I have been much more aware of my symptoms over recent months.

I have writtenbeforeabout how my MS affects me, both physically and psychologically. Over the past year, since taking up blogging, I have had the opportunity to make new ‘MS…

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Dear Santa

MSnubutterflies

I never have a Christmas wish list. There’s not really anything I want. I already have everything. All of the meaningful things in life. Two beautiful kids, a loving man, and the best sister. Parents that love me, friends, and a roof over my head. That’s all I need.

Gifts have never been on my priority list. Material things are just things. So when asked what I want for Christmas I usually say nothing or I don’t know. What could I possibly want?

A new leg, a new eye, not to walk like a drunk. Just kidding!

A couple nights ago and like most nights I was unable to sleep. Thanks again MS…lol. I don’t want to keep anyone up with lights or the TV so just like every other night I have nothing better to do but entertain myself with thought. A traffic jam in my brain. Yes I…

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Danny’s World: MS Can’t Hold Me Down-Obstacles Are Designed To Be Overcome

I know a lot of my readers suffer from chronic pain and I try to be an example of how to fight back.  Today I went for a quick walk.  I didn’t want to and my body yelled at me every step of the way, but I know I have to do it.  I look at exercise like this…if I don’t force my body to move, then MS wins.  I know a lot of you don’t exercise because you have told me so.  You have said it hurts too bad.  You have said you are too tired.  I get it.

I almost had to call Evelina to come and get me, but I didn’t.  I willed myself to finish what I started because in the long run it will benefit me more than sitting around doing nothing.  Do you think I want to?  No, I would rather sit and do nothing.

To those who tell me they cannot I would challenge you to begin thinking about what you can do instead of what you cannot do.  If you can only walk to the end of the driveway then do so.  If you can do arm lifts from your chair, then do so.  If you can swim in the pool, then do so.  Do what you can do, but don’t settle for doing nothing.

And it begins by putting one foot in front of the other.

Dizzy’s top tips for keeping cool!

Dinosaurs, Donkeys and MS

Summer is on it’s way and me and Dizzy have definitely noticed an increase in humidity! For us this means being even more dizzy…

Heat is known for making MS symptoms grumpy so we’ve put together our top 5 tips for helping stay cool this Summer! 🙂

  1. Drinks lots and lots and lots!

Dizzythedonkey mug

2. Wear thin clothing and make sure you’re protected from the sun if you’re outside for long periods of time.

Dizzy went for the largest hat she could find…

Dizzythedonkey hat

3. If you’re out and about take a cooling kit with you! In ours we have water, a fan and cooling spray.

Dizzythedonkey cooling kit

4. Find ways to help cool you down. This could include having a cold drink, having a cool baths/shower or splashing about in a paddling pool.

Dizzy found a bird bath…

Dizzythedonkey bath.JPG

5. Find cool places to stay in.

Dizzy suggested sitting in the fridge to help keep cool but I think she…

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Revelation–Daily Prompt

Fearless

revelationI was sixty years old when I received the diagnosis of Multiple Sclerosis. About two years prior to that, I began experiencing some mobility and hand weakness problems. The doctor I was seeing did not see the need for further testing. When I changed insurance companies in January 2012, I scheduled an appointment with a new physical therapist. She told me that she couldn’t help me until I had my hip looked at by an orthopedist. Eventually, I received notice that I needed my hip replaced. So, silly me, I thought all my troubles would be over.

After the hip replacement in October 2012, all of the leg, foot (foot drop), and hand weakness remained. Several MRIs later showed that I had MS. That came on January 4, 2013. It was a huge revelation to me and my world spun off into a new trajectory. I was shocked, relieved, devastated…

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Danny’s World: My Current Situation

Danny's iphone 1063
Lunch – check

Meds – check

Stats update – check

I appreciate the kind well-wishes.  I’m feeling a bit better than this morning thank goodness.  I have learned the valuable lesson of listening to my body.  When it says it’s time to rest, then it’s time to rest!

It’s a Family Affair

Tripping Through Treacle

Having MS is sh*t.  There is no two ways about it and no one will convince me otherwise. Has it made me (mentally) stronger? Perhaps.  But I would happily trade a ‘strong’ MS mentality for a weak, blancmange-like one, if is meant that I didn’t have to deal with this.

One of my biggest worries is the idea of my kids getting it.  One of my earliest symptoms (though I didn’t know it at the time) was the feeling of water dripping down my back, when nothing was there.  So, when my daughter talks about pins and needles, or my son appears tired and exhausted, I panic.  My sensible brain tells me it is normal kids’ stuff; my neurotically worried mother brain tells me that it is just a matter of time before one or both of them are diagnosed.  My son is 5 years away from the age I…

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Do I Know You

MSnubutterflies

After an 11 day stay in the hospital, numerous MRI’s, every test known to man, and a lumbar puncture I was finally able to go home.

I was still having difficulty walking. Every step was like the first. I imagined this being what a baby felt like taking his/her first steps. I was actually telling myself ok leg move forward. As if telling my leg would make it go. I could take a couple steps and stop. My brain just not able to make a connection with my body. I walked sideways and backwards. I was happy just to move but I wondered if I would ever make it to my destination. Which was only about 20 steps to the restroom.

My hands were much the same. Shaking and forget picking anything up or holding it. At times my hands were stuck or drawn up. Eating or doing anything with…

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Another Hospital Trip, Another Purple Dress

h048017_13Daily Prompt – Better

I am late to the party on this daily prompt word (it is from Saturday). However, when I finally checked it I couldn’t resist as it is the perfect word on so many levels.

  1. On Friday at 2:20 pm (exactly 2 hours late), I was wheeled into the operating room for my hernia repair. The on-again-off-again-on-again surgery was finally happening. Since I only had around 48 hours notice, I was feeling better about it – not so much time to stress out.
  2. Much of the stress I was feeling about moving also melted away with the surgery. I can’t lift for 2-6 weeks and we are going to be in our new place two weeks from today (Saturday). I have packed about all I can and now I just leave it in the capable hands of Hubby, friends and, of course, God.
  3. I was able to handle…

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Dizzy, MS and possible redundancy…

Dinosaurs, Donkeys and MS

Me and Dizzy had abit of a stressful week last week. For the first time we’re facing possible redundancy and it’s got us thinking about employment and MS.

dizzy-work

Having MS has always made me feel vulnerable when it comes to work. I’m one of those people that worries far to much about letting people down and I’ve always worried what my employers would think. Would they think I was too unreliable? Not fit for the job? This is partly why I kept my condition a secret at work until recently. As it turned out they’ve been amazing about it! 🙂

Loads of positives have come from this and it’s made me feel so much more secure in my job. Until this. First I sat and worried about whether my condition would effect their decision and then I also started worrying if I am made redundant what do you tell people at an interview?! I know it’s illegal…

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