The Day My Life Changed

This is MSnubutterflies!!

MSnubutterflies

It was a normal day. Rushing to get the kids off to school and get ready for the work day. Feed the dogs. The usual stuff or so I thought. I didn’t feel good that morning. Which I guess should have been a clue. I hadn’t had so much as a cold in years. That’s exactly how I felt though like I was catching a cold. No biggie life keeps going right! I remember having a little time to relax because I was working later that day and thought a cup of tea might help.

I became very fatigued. I thought oh please don’t let this be the flu. I don’t have time for this with the kids and I was a retail manager and it’s October. As I went to leave for work my left leg was so heavy. It was like sandbags were tied to my ankle. My eye…

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My MS Story

Read Jen’s MS story at Tripping Through Treacle!

Tripping Through Treacle

So, I was a normal 13 year old girl, attending school, making new friends following an across the sea move from Canada and basically just getting on with being a teenager.

When I couldn’t see the basketball hoop at school, I had no idea that this was the start of something really scary, life changing in fact. I just thought that I needed glasses – what other reason would there be for the hoop to look fuzzy? I must have mentioned this to my parents – cue LOADS of different tests, including one where I was able to miss school (yes!) and have electrode type things put all over my head whilst, I am guessing, the doctors looked to see what my brain was doing. I still remember sitting in the car on my way home from that appointment, picking away at the glue like stuff stuck in my hair…

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Lessons with MS: Telling people

This is Dinosaurs, Donkeys and MS!

Dinosaurs, Donkeys and MS

Me and Dizzy have been thinking about people recently. In particular, the dilemma of whether to tell people, or not to tell people when you’re diagnosed with a chronic condition.

dizzy-on-bed

I kept my MS a secret from most people until very recently. I think the main reasons for me was the worry of being judged. Of people seeing me differently, not as capable, able or reliable anymore. There was also the dealing with people’s reactions. I still don’t understand why people feel the need to always go ‘I knew someone with MS…’ and then either ‘they’re in a wheelchair’ or even better, ‘they’re dead now’. That’s always just great to hear… It’s also easier not to say anything and just to carry on as though everything’s normal. Because it’s not just the worrying about how people will react it’s the also telling part. When is a good time to come out…

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One Lovely Blog Award

MSnubutterflies won an award!

MSnubutterflies

I was nominated for One Lovely Blog Award by Tina at Invisible Illness.

Blogger TYTina shares her personal story living with invisible illnesses in hopes of raising awareness. Through it all she remains positive and chooses to count the blessings in her life.

Rules:

  • Thank the person that nominated you and leave a link to their blog
  • Post about the award
  • Share seven facts about yourself
  • Nominate at most 15 other people
  • Tell your nominees the good news.

About this award:

I enjoy these awards because it gives us a chance to learn more about each other and share links of other bloggers.

Seven Facts About Me:

  1. I have two fur babies ( Niko and Max) that follow me every where I go.
  2. I love crafts and DIY projects. I also sketch but I don’t let anyone see them.
  3. I don’t really watch TV. Never have.
  4. I love to take…

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Trip to the neurologist

This is Fearless!!

Fearless

doctorFinding the right neurologist is critical for those of us with multiple sclerosis and other chronic diseases.  I have changed neurologists twice since being diagnosed with multiple sclerosis. Once when I had a change of health insurance. And once when I moved to North Carolina.  I have been very fortunate to find wonderful neurologists.  I know this is not the case with everyone  and perhaps the following tools will help you.

My current neurologist has come to our self-help group and discussed various things. She’s a great resource. Right now I am in between visits. And I’m making a list of things that I need to discuss with her.  I have a tendency forget things when I am face-to-face with the doctor.  I can remember them after I leave, though!  I keep them electronically on my smart phone and iPad. They both have voice recognition capabilities which helps me a…

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3 Bits of Advice For Anyone Diagnosed With Multiple Sclerosis

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The Player I’ll Be Watching

Great story on Peace From Panic!

Peace from Panic

When I watch the Rose Bowl on Monday (Penn State vs. USC), I’m going to keep my eye out for number 99 on Penn State. Joey Julius, a kicker, is a big guy, at 5’10” and 271 pounds. But it’s not just his size that makes him big. People who don’t even  follow football admire and look up to him.

During the spring and summer of 2016, he wasn’t at practice. Instead, the 21-year-old  was spending time at a treatment center improving his health. After he left, he told his Mom he wasn’t being true to himself. No one knew about his real fight.

In October, Joey decided to divulge his secret on Facebook. He has binge eating disorder, depression, and anxiety.

It’s hard to be vulnerable and admit you have a problem that you’ve hid for years, especially when in the public eye. But once it’s out in the…

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Food and Drink

I would like to introduce you to Fearless: Jo Ann Maxwell!!

Fearless

The holidays between Thanksgiving and New Year’s are typically a time when people overeat or at least eat things that they normally don’t eat. There’s a big turkey dinner, eggnog, cookies galore, special desserts, family gatherings, more big meals, football games, and any other celebrations that people can think up.
Since being diagnosed with multiple sclerosis, I’ve tried to really watch what I eat. I try to eat more fruits and vegetables, such as eating the rainbow. I try to limit my white foods, such as sugar, flour and white potatoes. During this time of year it’s even doubly hard to watch what I eat. Too many cookies, too many pies, and just a lot of good sweets. Since each of those white foods is inflammatory, I know that if I eat too much, my legs and feet spasm and cramp more than they usually do.
Since moving to the…

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How to make nut butter slices

Meet Dinosaurs, Donkeys and MS!!

Dinosaurs, Donkeys and MS

Another foody type post today! I always find by Boxing day I have completely forgotten what day of the week it is and am spending way to much time in front of the telly, so today me and Dizzy decided to make stuff in the kitchen instead!

I discovered these nut butter slices a while ago. I love them because they are super yummy but also super simple to make! 🙂

Nut butter slices:

img_0631

Ingredients:

  1. Nut butter of your choice (I’ve used peanut butter and triple nut butter before, both have worked really well!)
  2. Honey
  3. Oats
  4. Any extras you would like too add. 🙂 I add lots of ground ginger and/ or cinnamon as I love the flavour of these but you can add pretty much anything. Nuts, chocolate and spices work really well.

Amount wise is up to you! You can add the same amount of honey, oats and nut butter but I love…

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My MS Story: From Symptoms to Diagnosis

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