Many people with a chronic illness will have heard of the ‘spoon theory’; the idea that you start your day with X number of spoons (i.e. the energy needed to complete a task) and that every activity in your day uses those spoons up. It goes something like this :
Start my day with 12 spoons
1. Wake up and have a shower uses 1 spoon
2. Getting dressed, doing hair, putting make up on uses 2 spoons
Showering and getting ready is exhausting; for many people with MS, including me, the warmth of the water exacerbates symptoms. I love baths but they are a distant memory for me now, due to the adverse effect they have on my legs. My shower stool is my friend.
I usually try and rest for 5-10 minutes after my shower to allow my legs time to rest. Obviously, this is not always possible…
Dizzy decided last week that she would love to take part in the MS Society’s Kiss Goodbye to MS campaign! She’s been inspired by all the photos of people kissing goodbye to MS to raise funds for research.
Dizzy can’t resist brownies.
She’s usually munching on brownies whether they’re her brownies or not. So we thought this would be the perfect thing to kiss goodbye to!
Dizzy has been finding this a challenge but has discovered 3 top tips to help her succeed!
Find a replacement for what you are giving up!
Dizzy loves snacking on brownies so when she started to get near snack time she wanted brownies! I was hoping we could go for a healthy replacement.
But she wasn’t having any of that…
…. so now Dizzy is on the gingernut biscuits.
2. Count down the days!
Dizzy (with abit of my help) has created a calendar so she can cross off the…
I have been going through a particularly stressful patch of late…I won’t go into the details of why, but lets just say that health, relationships and work all play a part – I am aware that I am not always a ‘fun Jen’ to be around at the moment.
My stress manifests itself as feeling wound up and anxious. Things that I can normally handle with ease really get to me. Like the fact that I have to repeat myself several times in order for the kids to carry out simple tasks, like brushing their teeth, or setting the table, or putting their shoes away. Things they should be doing automatically anyway. Ahhhggh! Just thinking about it stresses me out!
I suppose the good thing is that I am able to recognise that I am feeling this way and can therefore try and do something about it. My…
The word “heal” can take on a whole different meaning when you have a chronic illness.
I remember the first thing they told us at my pain management program was “We are not here to take your pain away. If you could be healed from it, you wouldn’t be here.” The words hit hard, but we all knew it was true. We were there to learn how to live with our symptoms the best way possible.
As a Christian, I believe the Lord can heal anyone. And this isn’t about faith healings, just that God is in control of everything in my life.
So do these two things contradict for me? No, not at all. When people say they are praying for God to heal me, I say for them to pray for God’s will. He never lets anything happen without reason and I believe I…
Originally posted on Dinosaurs, Donkeys and MS: A few weeks ago me and Dizzy did a blog post on 10 things about living with MS for MS awareness month. Living with any chronic illness is ridiculously difficult but I wanted to…
As a continuation of my “Ultimate Guide to Nutrients”, today I’ll discuss sugar. So, just what is sugar? Sugar is considered a “simple carbohydrate”. Here is a refresher on simple carbohydrates, from my previous carbohydrate article:
SIMPLE CARBOHYDRATES-consist of monosaccharides and disaccharides.These carbohydrates includes glucose. The function of glucose in the body is to provide the cells of the body energy. Other energy sources can be used, but it is the preferred fuel for the nervous system/brain and the sole energy source red blood cells. In other words, carbohydrates are a very important part of any healthy diet.
Here’s a breakdown of simple carbohydrates.
Monosaccharides-1 sugar molecule
Disaccharides-2 sugar molecules
lactose-made up of galactose and glucose…found in milk and dairy products
sucrose-made up of fructose and glucose…simple table sugar
maltose-made up of 2 glucose molecules…not found in many food items, but instead made from the breakdown of…
Every time I’m planning a trip away from home for a day, weekend a week or even just a long day of errands, it kinda scares me, especially when I’m traveling alone, because, to put it simply, I just don’t trust my body some days I like to have fun and yet because my body doesn’t always have the same ideas I do I feel like I am disappointing others, holding them back, you know a stick in the mud.
Somedays It’s really hit or miss ifmy body will cooperate or be a big fail. I try plan the best I can,but hey we all knows things can often go very wrong.
I don’t always know that my bones will be in sync with the rest of me,especially my back ,will it hold out and I’ll be able to walk all the places I need to be. Or just be…
I thought that I might have been having a bit of a ‘blip’, having a bad patch, so to speak. But this is the new me. The new me that lives under a cloud of stress and worry. After 19 years of being pretty much symptom-free, my MS turned obviously ‘Secondary Progressive’ about 5 years ago. Cue walking difficulties, fatigue and cog-fog (for me this means memory problems, difficulties concentrating and finding the right words at times). Within 5 years I have gone from an active, confident woman, to one who worries incessantly about the future – my own and my children’s. My husband will also vouch for a massive increase in my anxiety levels. I often feel anxious about going out (will there be somewhere I can sit?) and I now have a need to plan and organise my time, as…
I am not a complainer. Or should I say I complain but I don’t make a habit of doing so. I am especially quiet when it comes to the pain my body experiences due to my MS. I’m not a fan of people who constantly gripe and moan about their life. I know this post is going to ruffle some feathers, but I need to get this off my chest.
I understand life can be difficult. After all I live with a disease which is trying to kill me, worse case put me in a wheel chair; best case take away my lifestyle. But I don’t complain. This is the hand dealt me and it is my job to do the best with what remains.
I especially don’t have sympathy for those who complain about pain or how they feel while they have weak eating habits and make excuses as to why they cannot exercise at all, ever. I read a story of a girl who was wheelchair bound who lost nearly 60 pounds by watching her intake and finding exercises she could handle. Disease does not make you eat poorly. And the vast majority of people can find some type of exercise to which they are capable; IF they want to. “If” being the key word.
I know some will get upset at what I am saying and I’m okay with it. But before you get upset and jump on the defensive, stop and think.
It has been a while since I’ve blogged; my recent time has been taken up with work, a European city break, birthday planning and, let’s face it, a great deal of rest and sleep (needed after those other things!)
I really want to blog more regularly and consistently, but to be honest I am finding it harder and harder at the moment. These days, even small amounts of activity (i.e. baking a cake for my husband’s birthday or going out for a meal) exhausts me; my spoons have reduced in number; either that or the simplest of activities use up more spoons than they used to. Either way, I’m struggling. Just when I think that I can’t have any more MS problems, a new one crops up. My running total so far includes all of the following, with the exception of any problems with my bladder and bowel: