3 Bits of Advice For Anyone Diagnosed With Multiple Sclerosis

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The Player I’ll Be Watching

Great story on Peace From Panic!

Peace from Panic

When I watch the Rose Bowl on Monday (Penn State vs. USC), I’m going to keep my eye out for number 99 on Penn State. Joey Julius, a kicker, is a big guy, at 5’10” and 271 pounds. But it’s not just his size that makes him big. People who don’t even  follow football admire and look up to him.

During the spring and summer of 2016, he wasn’t at practice. Instead, the 21-year-old  was spending time at a treatment center improving his health. After he left, he told his Mom he wasn’t being true to himself. No one knew about his real fight.

In October, Joey decided to divulge his secret on Facebook. He has binge eating disorder, depression, and anxiety.

It’s hard to be vulnerable and admit you have a problem that you’ve hid for years, especially when in the public eye. But once it’s out in the…

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Food and Drink

I would like to introduce you to Fearless: Jo Ann Maxwell!!

Fearless

The holidays between Thanksgiving and New Year’s are typically a time when people overeat or at least eat things that they normally don’t eat. There’s a big turkey dinner, eggnog, cookies galore, special desserts, family gatherings, more big meals, football games, and any other celebrations that people can think up.
Since being diagnosed with multiple sclerosis, I’ve tried to really watch what I eat. I try to eat more fruits and vegetables, such as eating the rainbow. I try to limit my white foods, such as sugar, flour and white potatoes. During this time of year it’s even doubly hard to watch what I eat. Too many cookies, too many pies, and just a lot of good sweets. Since each of those white foods is inflammatory, I know that if I eat too much, my legs and feet spasm and cramp more than they usually do.
Since moving to the…

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How to make nut butter slices

Meet Dinosaurs, Donkeys and MS!!

Dinosaurs, Donkeys and MS

Another foody type post today! I always find by Boxing day I have completely forgotten what day of the week it is and am spending way to much time in front of the telly, so today me and Dizzy decided to make stuff in the kitchen instead!

I discovered these nut butter slices a while ago. I love them because they are super yummy but also super simple to make! 🙂

Nut butter slices:

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Ingredients:

  1. Nut butter of your choice (I’ve used peanut butter and triple nut butter before, both have worked really well!)
  2. Honey
  3. Oats
  4. Any extras you would like too add. 🙂 I add lots of ground ginger and/ or cinnamon as I love the flavour of these but you can add pretty much anything. Nuts, chocolate and spices work really well.

Amount wise is up to you! You can add the same amount of honey, oats and nut butter but I love…

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My MS Story: From Symptoms to Diagnosis

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Physio and Brain scan

I would like everyone to meet Dinosaurs, Donkeys and MS!!

Dinosaurs, Donkeys and MS

This week was my first ever physio appointment. Having never had physio before I wasn’t sure what I expected. In my mind I was imagining some sort of fast paced exercise routine that left me feeling ten times dizzier than when I arrived. Thankfully it turned out to be much gentler. The most strenuous part was arriving at the wrong entrance and a trying to be helpful man marching along the corridor to take me to the right place. I felt like saying something but ended up going for my usual approach of not saying anything while trying to shuffle along at a reasonable pace and not topple over in the process. Then it was an hour of questions and gentle pushing on limbs. I was so impressed with how lovely everyone was and the location. This is the garden and they even had sheep!

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I am also so grateful to the MS Society for funding the treatment here as otherwise the wait…

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The Blogger Q&A Tag

I would like you to meet MSnubutterflies!!

MSnubutterflies

First of all thank you to Jen from Tripping Through Treacle for nominating me. Like Jen I think these are fun because it gives us a chance to get to know each other better.

Jen also writes about her journey with MS. She is among one of the many chronic illness blogs I enjoy. Please stop by and visit her.

As much as I enjoy participating in these types of post I feel I should apologize in advance that my answers may be short or may seem not to be well thought through. I’m in a bit of a fog today and finding it difficult to find words and put thoughts together. It would seem smart to wait for a better day right! Honestly I don’t know when that will be and knowing me I would forget about the post all together. Lol. So it is what it is. I’ll…

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What We See of Others Is Often An Illusion

We’ve all heard the expression ‘What you see is what you get.’  Well, this is not always true.  One of the most aggravating things about having MS is hearing people say “you don’t look sick.”  As if there is some particular way those living with MS should appear.  I guess I missed the memo.

life

What we see of others is often an illusion.  For some the illusion is self-created to block others out.  For others the illusion is created out of necessity to survive day-to-day.  Regardless of the circumstances it is not always easy to know what is going on with someone internally.  I can say that I am guilty of being quick to make judgements even though I work so hard to fight it.  For some reason it is so easy to assume the person who just changed lanes on me is an idiot.  The truth is I have no idea what that person might be going through.  Maybe they just received terrible news and are on the way to see a loved one in the hospital?  Or they might be exhausted from working 3 jobs as a single parent to provide for their family?

The illusion that I create is my body doesn’t hurt and I am okay.  I don’t complain much about the daily pain that comes with Multiple Sclerosis.  I don’t see the benefit of being that person who looks for sympathy.  The truth is that even if someone took the time to listen, they really only care for a moment and then move on to their own problems; this is the reality of life.

It is only when I take a deep breathe and step back that I remind myself to be more aware of what others might be going through.  A smile instead of a scowl could be the difference between someone pulling a trigger and someone seeking help.  Don’t depreciate your value to the world around you.

Take time to pause before reacting and consider the other side of the equation.  When you do you’ll see that we all need to be slower to judge and quicker to sympathize.

The Beginning of Change

Introducing MSnubutterflies!!

MSnubutterflies

In no way do I feel sorry for myself or do I feel like why me. I am no different to anyone else though there are times that are hard. It is how we choose to face that and our attitude that makes all the difference. Life is constant change, self growth, acceptance, and adapting. This is just another one of those moments in my life.

As the physical and mental drain of the past few months set in I find myself having some difficulty adapting. For some this is probably hard to understand or relate to. Not only am I faced with a body that no longer works the way it once did but the mental drain is taking a toll on me. For me this was harder than the physical aspect.

Your mind is overloaded with constant thought and awareness of what you are doing and those around…

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