Label–Daily Prompt

Are you following Fearless?

Fearless

Do you label people? Tall, short, fat, skinny, hair color or style, black, brown, white, mobility or lack there of, kind of car, and on and on.

Personally, I hate labels. I try to look at the inside of the person rather than the outside. It’s not an easy thing to do! 1 Samuel 16:7 says “But the Lord said to Samuel, do not look at his appearance or at his physical nature, because I have refused him. For the Lord does not see is man sees, for man looks at the outward appearance, but the Lord looks at the heart.”

In Matthew 7:1, Jesus says “Judge not, that you be not judged. For with what judgment you judge, you will be judged, and with the measure you use, it will be measured back to you.” In verse 5, He goes on to say “Hypocrite! First remove the plank from…

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Something you shouldn’t say to someone living with a Chronic Illness

This is MSnubutterflies!

MSnubutterflies

Quite often I see posts on social media about annoying things people say to someone living with a chronic illness. One of the most annoying comments is You don’t look sick. Referring to the fact that if we maintain a somewhat normal life and appearance. Do our hair and makeup. We must not be sick. As wrong and annoying as that comment is for me I find it more annoying when I have spent 2 to 3 hours to make myself look good and there is always that one person that wants to point out the one thing you missed or maybe just chose not to do. I’m thinking hey I look good. I might even go as far as to say (looking in the mirror) hey girl you still got it going on :). I know what I looked like before and what it took to get myself ready.

It’s…

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March: MS Awareness Month

One of the best MS posts I’ve read!!

Tripping Through Treacle

March heralds MS Awareness month. But what does this actually mean? In my life, I’ve found that most people are ‘aware’ of MS; they have a 2nd cousin twice removed who has it, or, as my husband used to think, ‘it is something that affects your mobility… so you end up in a wheelchair’. Heck,Iused to associate MS with wheelchairs… I remember being at Primary School, meeting a man using a wheelchair. He had MS.

But if I was going to raise awareness of MS, there are a few simple things I would like to make other people, those who have no personal knowledge and experience of MS, to be aware of:

Aware…. that MS is a ‘snowflake’ disease. We are all the same (have the same disease, Multiple Sclerosis), but we are all different. We may not all have the samesymptomsand, if we…

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Dizzy’s first holiday!

Gallery

This gallery contains 4 photos.

Originally posted on Dinosaurs, Donkeys and MS:
Last week me and Dizzy went to the New Forest! This was Dizzy’s first holiday away! I must admit at first I did feel like I couldn’t really be bothered to go. With…

A New Phase

Welcome to Tripping Through Treacle!

Tripping Through Treacle

I am about to start a new phase of my MS journey…..a full 25 years after my first MS symptom, I am about to start a Disease Modifying Drug (DMD) called ‘Tecfidera’.


Will I have to inject myself?  How is it going to help me?  What will the side effects be?  I had all these questions and more when my Neuro pointedly recommended that I take the drug when I saw him a couple of weeks ago – in fact he said, ‘I am going to be your Father now, and tell you that you have to take it’.

The answers to my questions were as follows:

It is taken as a pill twice a day

He doesn’t know if it definitely is going to help me, but he hopes that it might help my disease progression to slow down

The side effects can include flushing, abdominal pain, nausea, vomiting, indigestion, itching……

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The Day My Life Changed

This is MSnubutterflies!!

MSnubutterflies

It was a normal day. Rushing to get the kids off to school and get ready for the work day. Feed the dogs. The usual stuff or so I thought. I didn’t feel good that morning. Which I guess should have been a clue. I hadn’t had so much as a cold in years. That’s exactly how I felt though like I was catching a cold. No biggie life keeps going right! I remember having a little time to relax because I was working later that day and thought a cup of tea might help.

I became very fatigued. I thought oh please don’t let this be the flu. I don’t have time for this with the kids and I was a retail manager and it’s October. As I went to leave for work my left leg was so heavy. It was like sandbags were tied to my ankle. My eye…

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My MS Story

Read Jen’s MS story at Tripping Through Treacle!

Tripping Through Treacle

So, I was a normal 13 year old girl, attending school, making new friends following an across the sea move from Canada and basically just getting on with being a teenager.

When I couldn’t see the basketball hoop at school, I had no idea that this was the start of something really scary, life changing in fact. I just thought that I needed glasses – what other reason would there be for the hoop to look fuzzy? I must have mentioned this to my parents – cue LOADS of different tests, including one where I was able to miss school (yes!) and have electrode type things put all over my head whilst, I am guessing, the doctors looked to see what my brain was doing. I still remember sitting in the car on my way home from that appointment, picking away at the glue like stuff stuck in my hair…

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Lessons with MS: Telling people

This is Dinosaurs, Donkeys and MS!

Dinosaurs, Donkeys and MS

Me and Dizzy have been thinking about people recently. In particular, the dilemma of whether to tell people, or not to tell people when you’re diagnosed with a chronic condition.

dizzy-on-bed

I kept my MS a secret from most people until very recently. I think the main reasons for me was the worry of being judged. Of people seeing me differently, not as capable, able or reliable anymore. There was also the dealing with people’s reactions. I still don’t understand why people feel the need to always go ‘I knew someone with MS…’ and then either ‘they’re in a wheelchair’ or even better, ‘they’re dead now’. That’s always just great to hear… It’s also easier not to say anything and just to carry on as though everything’s normal. Because it’s not just the worrying about how people will react it’s the also telling part. When is a good time to come out…

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One Lovely Blog Award

MSnubutterflies won an award!

MSnubutterflies

I was nominated for One Lovely Blog Award by Tina at Invisible Illness.

Blogger TYTina shares her personal story living with invisible illnesses in hopes of raising awareness. Through it all she remains positive and chooses to count the blessings in her life.

Rules:

  • Thank the person that nominated you and leave a link to their blog
  • Post about the award
  • Share seven facts about yourself
  • Nominate at most 15 other people
  • Tell your nominees the good news.

About this award:

I enjoy these awards because it gives us a chance to learn more about each other and share links of other bloggers.

Seven Facts About Me:

  1. I have two fur babies ( Niko and Max) that follow me every where I go.
  2. I love crafts and DIY projects. I also sketch but I don’t let anyone see them.
  3. I don’t really watch TV. Never have.
  4. I love to take…

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