Danny’s World: MS Can’t Hold Me Down-Obstacles Are Designed To Be Overcome

I know a lot of my readers suffer from chronic pain and I try to be an example of how to fight back.  Today I went for a quick walk.  I didn’t want to and my body yelled at me every step of the way, but I know I have to do it.  I look at exercise like this…if I don’t force my body to move, then MS wins.  I know a lot of you don’t exercise because you have told me so.  You have said it hurts too bad.  You have said you are too tired.  I get it.

I almost had to call Evelina to come and get me, but I didn’t.  I willed myself to finish what I started because in the long run it will benefit me more than sitting around doing nothing.  Do you think I want to?  No, I would rather sit and do nothing.

To those who tell me they cannot I would challenge you to begin thinking about what you can do instead of what you cannot do.  If you can only walk to the end of the driveway then do so.  If you can do arm lifts from your chair, then do so.  If you can swim in the pool, then do so.  Do what you can do, but don’t settle for doing nothing.

And it begins by putting one foot in front of the other.

Do I Know You

MSnubutterflies

After an 11 day stay in the hospital, numerous MRI’s, every test known to man, and a lumbar puncture I was finally able to go home.

I was still having difficulty walking. Every step was like the first. I imagined this being what a baby felt like taking his/her first steps. I was actually telling myself ok leg move forward. As if telling my leg would make it go. I could take a couple steps and stop. My brain just not able to make a connection with my body. I walked sideways and backwards. I was happy just to move but I wondered if I would ever make it to my destination. Which was only about 20 steps to the restroom.

My hands were much the same. Shaking and forget picking anything up or holding it. At times my hands were stuck or drawn up. Eating or doing anything with…

View original post 329 more words

Counting My Spoons

Tripping Through Treacle

Many people with a chronic illness will have heard of the ‘spoon theory’; the idea that you start your day with X number of spoons (i.e. the energy needed to complete a task) and that every activity in your day uses those spoons up. It goes something like this :

Start my day with 12 spoons

1. Wake up and have a shower uses 1 spoon

2. Getting dressed, doing hair, putting make up on uses 2 spoons

Showering and getting ready is exhausting; for many people with MS, including me, the warmth of the water exacerbates symptoms. I love baths but they are a distant memory for me now, due to the adverse effect they have on my legs. My shower stool is my friend.

I usually try and rest for 5-10 minutes after my shower to allow my legs time to rest. Obviously, this is not always possible…

View original post 579 more words

Dizzy Kissing Goodbye to MS

Dinosaurs, Donkeys and MS

Dizzy decided last week that she would love to take part in the MS Society’s  Kiss Goodbye to MS campaign! She’s been inspired by all the photos of people kissing goodbye to MS to raise funds for research.

Dizzy can’t resist brownies.

She’s usually munching on brownies whether they’re her brownies or not. So we thought this would be the perfect thing to kiss goodbye to!

img_0783

Dizzy has been finding this a challenge but has discovered 3 top tips to help her succeed!

  1. Find a replacement for what you are giving up!

Dizzy loves snacking on brownies so when she started to get near snack time she wanted brownies! I was hoping we could go for a healthy replacement.

But she wasn’t having any of that…

carrot!

…. so now Dizzy is on the gingernut biscuits.

Biscuits

2. Count down the days!

Dizzy (with abit of my help) has created a calendar so she can cross off the…

View original post 153 more words

Stressed

Tripping Through Treacle!

Tripping Through Treacle

I have been going through a particularly stressful patch of late…I won’t go into the details of why, but lets just say that health, relationships and work all play a part – I am aware that I am not always a ‘fun Jen’ to be around at the moment.

My stress manifests itself as feeling wound up and anxious. Things that I can normally handle with ease really get to me.  Like the fact that I have to repeat myself several times in order for the kids to carry out simple tasks, like brushing their teeth, or setting the table, or putting their shoes away.  Things they should be doing automatically anyway.  Ahhhggh!  Just thinking about it stresses me out!


I suppose the good thing is that I am able to recognise that I am feeling this way and can therefore try and do something about it.  My…

View original post 425 more words

Chronic Pain, Heal Thyself?

Being Lydia!

Being Lydia!

Daily Prompt – Heal

ChronicPainThe word “heal” can take on a whole different meaning when you have a chronic illness.

I remember the first thing they told us at my pain management program was “We are not here to take your pain away. If you could be healed from it, you wouldn’t be here.” The words hit hard, but we all knew it was true. We were there to learn how to live with our symptoms the best way possible.

As a Christian, I believe the Lord can heal anyone. And this isn’t about faith healings, just that God is in control of everything in my life.

So do these two things contradict for me? No, not at all. When people say they are praying for God to heal me, I say for them to pray for God’s will. He never lets anything happen without reason and I believe I…

View original post 395 more words

10 positives about living with MS

Gallery

This gallery contains 8 photos.

Originally posted on Dinosaurs, Donkeys and MS:
A few weeks ago me and Dizzy did a blog post on 10 things about living with MS for MS awareness month. Living with any chronic illness is ridiculously difficult but I wanted to…

Ultimate Guide to Nutrients: Sugar

The Purple Almond!

The Purple Almond

to know more, visit www.naturefund.com

As a continuation of my “Ultimate Guide to Nutrients”, today I’ll discuss sugar. So, just what is sugar? Sugar is considered a “simple carbohydrate”. Here is a refresher on simple carbohydrates, from my previous carbohydrate article:

SIMPLE CARBOHYDRATES-consist of monosaccharides and disaccharides.These carbohydrates includes glucose. The function of glucose in the body is to provide the cells of the body energy. Other energy sources can be used, but it is the preferred fuel for the nervous system/brain and the sole energy source red blood cells. In other words, carbohydrates are a very important part of any healthy diet.

Here’s a breakdown of simple carbohydrates.

  • Monosaccharides-1 sugar molecule
    • glucose
    • fructose
    • galactose
  • Disaccharides-2 sugar molecules
    • lactose-made up of galactose and glucose…found in milk and dairy products
    • sucrose-made up of fructose and glucose…simple table sugar
    • maltose-made up of 2 glucose molecules…not found in many food items, but instead made from the breakdown of…

View original post 601 more words

Today’s Featured Reblog…Chronically Grateful Me!

Chronically Grateful Me!

Chronically Grateful Me

Every time I’m planning a trip away from home for a day, weekend a week or even just a long day of errands, it kinda scares me, especially when I’m traveling alone, because, to put it simply, I just don’t trust my body some days I like to have fun and yet because my body doesn’t always have the same ideas I do I feel like I am disappointing others, holding them back, you know a stick in the mud.

Somedays It’s really hit or miss ifmy body will cooperate or be a big fail. I try plan the best I can,but hey we all knows things can often go very wrong.

I don’t always know that my bones will be in sync with the rest of me,especially my back ,will it hold out and I’ll be able to walk all the places I need to be. Or just be…

View original post 575 more words

Cloudy Days and Rainbows

Tripping Through Treacle!

Tripping Through Treacle

Things have taken a turn for the worse.

I thought that I might have been having a bit of a ‘blip’, having a bad patch, so to speak.  But this is the new me.  The new me that lives under a cloud of stress and worry.  After 19 years of being pretty much symptom-free, my MS turned obviously ‘Secondary Progressive’ about 5 years ago.  Cue walking difficulties, fatigue and cog-fog (for me this means memory problems, difficulties concentrating and finding the right words at times).  Within 5 years I have gone from an active, confident woman, to one who worries incessantly about the future – my own and my children’s.  My husband will also vouch for a massive increase in my anxiety levels.  I often feel anxious about going out (will there be somewhere I can sit?) and I now have a need to plan and organise my time, as…

View original post 376 more words