I still remember the first thing said at my two-month pain clinic. This could be partly due to the fact I took it twice (due to my father’s passing); however, it is mostly because of the impact that it made on all of us.
“You are not here for us to help you get rid of your pain. If that was possible, you wouldn’t be here. We are here to help you manage that pain and have a better life in spite of it.”
Acute pain is what you get when you break a leg, have a headache or need your appendix removed. It is there to warn you of some danger or issue that needs to be looked after. When you put your hand on something hot you feel burning pain and usually remove it pretty quickly so you do not get severely burned. This is your brain receiving…
For the last couple of weeks we’ve started taking a look at some foods that may be helpful for fibromyalgia. If you missed the first two posts, you can find them here (Part 1) and here (Part 2). I’m highlighting some foods because of the specific nutrients they contain that may help with fibromyalgia, but these are definitely just some of the foods we may want to include in our diets (and whenever I reference diet, I’m just talking about what we eat, not a specific diet). A healthy diet should include a variety of foods. As I mentioned in For the Love of Food, we don’t yet understand how food works synergistically in our bodies to give us all the nutrition we need, and our best bet for getting those nutrients is to eat an array of real foods, foods closest…
It has been a minute since I updated everyone on the MS front so here goes. I have been off all my medications for about a year. I will take the occasional pain pill, but I try to limit those because they are dangerous. I stopped taking my injections of Copaxone in May of 2016 simply because I was worn out from giving myself an injection 3 times per week for nearly 3 years.
Without the medications I simply have to tough it out. It isn’t easy, but I prefer the pain to all of the side effects of the pills. I’m not sure which is worse, MS or the medicines used to treatment MS.
My two primary symptoms that I deal with are fatigue and lightning flash pains. The fatigue I manage as best I can and have learned to rest a lot on the weekends. There are still times when I am asleep at night before 9. I joke with Evelina that I’m just getting older and eventually you’ll find me at the cafeteria at 4:45 pm eating dinner.
For my fellow MSers you understand the flash pains. They are the ultimate in shooting pains in my hips, legs, elbows and hands. They hurt pretty bad, but it’s nothing I can’t handle. Like I said, for now I’ll deal with them versus taking carbamazepine.
All-in-all I cannot complain too much. I am sure there is someone in this world who would gladly switch places with me. Isn’t life funny like that? We think we have struggles until we read the story of someone who is fighting an incredible battle.
I hope everyone takes time be thankful for the simple pleasures of being able to walk. It it so easy to take it for granted.
I’m not exactly sure what is going on, but I woke up this morning with a fever and nausea. I have not been able to eat all day excluding crackers and water. Evelina made some homemade chicken & rice soup which was tasty. Hopefully this is a 24-hour thing.
I worked an extra day over the summer, which means that I have an extra day off this week as lieu time – yippee! I purposefully waited to take it once the kids were back at school. I feel a bit guilty about this in some ways – perhaps I should have taken it off in the holidays – but I know that having a few days in a row to completely chill out and concentrate on me would do me and my MS, the world of good.
On Monday, after dropping the kids off on their first day back at school (see my thoughts on this here), Hubs and I went out for breakfast – beans on toast and OJ for me – and I then went back to bed for a nap. A blissful, 3 hour nap. I definitely needed it, as I woke up feeling more…
After an 11 day stay in the hospital, numerous MRI’s, every test known to man, and a lumbar puncture I was finally able to go home.
I was still having difficulty walking. Every step was like the first. I imagined this being what a baby felt like taking his/her first steps. I was actually telling myself ok leg move forward. As if telling my leg would make it go. I could take a couple steps and stop. My brain just not able to make a connection with my body. I walked sideways and backwards. I was happy just to move but I wondered if I would ever make it to my destination. Which was only about 20 steps to the restroom.
My hands were much the same. Shaking and forget picking anything up or holding it. At times my hands were stuck or drawn up. Eating or doing anything with…
It’s been a couple of weeks since my last post… I seem to have lost a bit of my blogging ‘mojo’, so to speak. This is ironic, as I have a bit more time at the moment to blog due to being medically signed off work (as my Multiple Sclerosis symptoms are making it a struggle). I’ve been dealing for some time now with high levels of fatigue and mobility difficulties (it is exhausting constantly feeling like you have a drag a heavy lump around, when it is actually just your leg). Somewhat unsurprisingly I guess, being off work has not lessened my MS symptoms… it has just meant that I am able to adjust my lifestyle and plan my days more to accommodate them. For me, this means taking a daily nap – I can guarantee that this will make me feel somewhat better and more awake for…
Me and Dizzy had abit of a stressful week last week. For the first time we’re facing possible redundancy and it’s got us thinking about employment and MS.
Having MS has always made me feel vulnerable when it comes to work. I’m one of those people that worries far to much about letting people down and I’ve always worried what my employers would think. Would they think I was too unreliable? Not fit for the job? This is partly why I kept my condition a secret at work until recently. As it turned out they’ve been amazing about it! 🙂
Loads of positives have come from this and it’s made me feel so much more secure in my job. Until this. First I sat and worried about whether my condition would effect their decision and then I also started worrying if I am made redundant what do you tell people at an interview?! I know it’s illegal…
It is called Tanzeum. I was wrong with the name the other day. They decreased my oral meds and said it will take a couple of weeks to settle down. I was only 74 the other day than today it was 159. Crazy.
Got my new diabetic shoes. Took forever. The smallest pair is too big for my feet. She had to rig them to fit.