The Day My Life Changed

This is MSnubutterflies!!

MSnubutterflies

It was a normal day. Rushing to get the kids off to school and get ready for the work day. Feed the dogs. The usual stuff or so I thought. I didn’t feel good that morning. Which I guess should have been a clue. I hadn’t had so much as a cold in years. That’s exactly how I felt though like I was catching a cold. No biggie life keeps going right! I remember having a little time to relax because I was working later that day and thought a cup of tea might help.

I became very fatigued. I thought oh please don’t let this be the flu. I don’t have time for this with the kids and I was a retail manager and it’s October. As I went to leave for work my left leg was so heavy. It was like sandbags were tied to my ankle. My eye…

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My MS Story

Read Jen’s MS story at Tripping Through Treacle!

Tripping Through Treacle

So, I was a normal 13 year old girl, attending school, making new friends following an across the sea move from Canada and basically just getting on with being a teenager.

When I couldn’t see the basketball hoop at school, I had no idea that this was the start of something really scary, life changing in fact. I just thought that I needed glasses – what other reason would there be for the hoop to look fuzzy? I must have mentioned this to my parents – cue LOADS of different tests, including one where I was able to miss school (yes!) and have electrode type things put all over my head whilst, I am guessing, the doctors looked to see what my brain was doing. I still remember sitting in the car on my way home from that appointment, picking away at the glue like stuff stuck in my hair…

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Lessons with MS: Telling people

This is Dinosaurs, Donkeys and MS!

Dinosaurs, Donkeys and MS

Me and Dizzy have been thinking about people recently. In particular, the dilemma of whether to tell people, or not to tell people when you’re diagnosed with a chronic condition.

dizzy-on-bed

I kept my MS a secret from most people until very recently. I think the main reasons for me was the worry of being judged. Of people seeing me differently, not as capable, able or reliable anymore. There was also the dealing with people’s reactions. I still don’t understand why people feel the need to always go ‘I knew someone with MS…’ and then either ‘they’re in a wheelchair’ or even better, ‘they’re dead now’. That’s always just great to hear… It’s also easier not to say anything and just to carry on as though everything’s normal. Because it’s not just the worrying about how people will react it’s the also telling part. When is a good time to come out…

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One Lovely Blog Award

MSnubutterflies won an award!

MSnubutterflies

I was nominated for One Lovely Blog Award by Tina at Invisible Illness.

Blogger TYTina shares her personal story living with invisible illnesses in hopes of raising awareness. Through it all she remains positive and chooses to count the blessings in her life.

Rules:

  • Thank the person that nominated you and leave a link to their blog
  • Post about the award
  • Share seven facts about yourself
  • Nominate at most 15 other people
  • Tell your nominees the good news.

About this award:

I enjoy these awards because it gives us a chance to learn more about each other and share links of other bloggers.

Seven Facts About Me:

  1. I have two fur babies ( Niko and Max) that follow me every where I go.
  2. I love crafts and DIY projects. I also sketch but I don’t let anyone see them.
  3. I don’t really watch TV. Never have.
  4. I love to take…

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The Valiant Blogger Award

Award time at Dinosaurs, Donkeys and MS!!

Dinosaurs, Donkeys and MS

valiant-blogger-300x288

Liz of Daily Warriors created this amazing award and the wonderful Elizabeth at The Comfortable Coop has nominated me for it! I’ve never seen myself as valiant but I’m really happy to have been nominated. 🙂

Also have a look at the Hall of Valor to see who else has been nominated and find links to their amazing and inspirational blogs. 🙂 xxx

RULES:
1. Post the award on your blog.
2. Provide a link to the Hall of Valor .
3. In 200 words or less, share about the greatest challenge in your life and HOW you got through it.
4. Give one piece of advice to people who are struggling with something in their life.
5. Thank the person who nominated you, and nominate a new blogger for the award.

What is the greatest challenge in your life and HOW you got through it?

My greatest challenge has definitely been…

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Trip to the neurologist

This is Fearless!!

Fearless

doctorFinding the right neurologist is critical for those of us with multiple sclerosis and other chronic diseases.  I have changed neurologists twice since being diagnosed with multiple sclerosis. Once when I had a change of health insurance. And once when I moved to North Carolina.  I have been very fortunate to find wonderful neurologists.  I know this is not the case with everyone  and perhaps the following tools will help you.

My current neurologist has come to our self-help group and discussed various things. She’s a great resource. Right now I am in between visits. And I’m making a list of things that I need to discuss with her.  I have a tendency forget things when I am face-to-face with the doctor.  I can remember them after I leave, though!  I keep them electronically on my smart phone and iPad. They both have voice recognition capabilities which helps me a…

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‘My Tummy Looks Fat’ – Body Image, my Kids and my Chronic Illness

This is Tripping Through Treacle!!

Tripping Through Treacle

“Mummy, I don’t like my tummy…it looks fat.”  

Imagine my horror when my 6 – year old daughter (yes, I said 6) said this to me the other day while I was helping her apply her nightly eczema cream.  Apparently, a child in her class had commented that it looked as though she had a “baby in her tummy” whilst they were getting changed for P.E….. and so it starts.

I remember all too well comparing myself to others when I was younger – although, for me, it started at a much later age than 6.  My little girl’s body shape is exactly like mine was at her age – strong and solid with, yes, a little bit of a tummy.  But she is a perfectly healthy weight for her height, she eats healthily most of the time and exercises regularly.

It is no wonder that children (girls and 

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Weekly Vlog: One Powerful Way I Overcome My MS!

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Spicy Rice Noodle Salad

You should follow MSnubutterflies!

MSnubutterflies

I love simple recipes and this one is as simple as it gets. Packed with flavor and it’s one you can make ahead and go about your day.

 Ingredients:

  • 1 pkg of Rice or Soba Noodles
  • 2 stalks of Celery chopped
  • 1 cup shredded Carrots
  • 1 cup shredded Green Cabbage
  • 1/2 cup shredded Red Cabbage
  • 1 cup of shredded or finely chopped Jicama
  • 1 1/2 cups of Zucchini
  • Salt and Pepper
  • 1 Jalapeno
  • 2 Cloves of Garlic
  • 1/4 cup chopped onion
  • 1/4 to 1/2 cup Bell pepper
  • 1 Habanero pepper
  • 3 T Sriracha sauce
  • 1 T Thai Pepper Paste
  • 3 T Soy Sauce
  • 3 T Oyster Sauce
  • 2 tsp. Sesame oil
  • 1 1/2 tsp. fresh grated Ginger
  • 1/2 tsp. fresh grated Turmeric
  • Juice of 1 lime or 1 T Vinegar
  • 2 to 3 T Brown Sugar
  • 1/2 C sliced Green Onion
  • Fresh Cilantro or Basil
  • Crushed peanuts, pine nuts, almond…

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Back in the pool

This is Fearless!!

Fearless

I love to swim. I learned how to swim at age 5. I begin competing at age 8. I continued through the first two years of college.  When I was working, it was difficult to get into the pool on a regular basis.  Now that I’m retired, I’ve begun going to our local recreation center and swimming three days a week.  I certainly don’t swim as I used to, but swimming is one of the best exercises for the whole body.  And I love it.

Several years ago I was with a friend at a Hot Springs spa in Montana. It had an outdoor pool and an indoor pool. For the couple of days we were there, I went down to swim. I noticed that I was having difficulty with the whip kick, which is part of the breaststroke. I wasn’t really swimming a lot then so I really didn’t…

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