Tag Archives: MS story

It Might Be Time For a MS Check-Up

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DannyUnfortunately I need to go see my neurologist.  I have noticed over the last few weeks that my symptoms are flaring up much more than usual.  This usually means a new lesion is causing an exacerbation.  When this occurs my limbs experience more pain than normal, which is incredibly uncomfortable.

Right now I am experiencing lightning flash pains in my legs that take my breathe away at times.  Also, I have been losing feeling in my left hand, which is a brand new symptom for me.  I’ve had hand pain in the past, but I’ve never experienced numbness.  The most annoying symptom is the return of the headaches.  I don’t want to go back on meds, but I also don’t want to burden Evelina with my constant complaining about the pain.

Hopefully the doctor has some great solution.

Dear Santa

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MSnubutterflies

I never have a Christmas wish list. There’s not really anything I want. I already have everything. All of the meaningful things in life. Two beautiful kids, a loving man, and the best sister. Parents that love me, friends, and a roof over my head. That’s all I need.

Gifts have never been on my priority list. Material things are just things. So when asked what I want for Christmas I usually say nothing or I don’t know. What could I possibly want?

A new leg, a new eye, not to walk like a drunk. Just kidding!

A couple nights ago and like most nights I was unable to sleep. Thanks again MS…lol. I don’t want to keep anyone up with lights or the TV so just like every other night I have nothing better to do but entertain myself with thought. A traffic jam in my brain. Yes I…

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10 Reasons I’m Rocking Motherhood

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Originally posted on MSnubutterflies:
When I saw that Jen from Tripping Through Treacle had tagged me in her post about Rocking Motherhood I was a little surprised to be honest. Maybe even wondering what I could add to such a wonderful tag.…

That for me is Enough

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MSnubutterflies!

MSnubutterflies

Last night was a rough night. I was in tremendous pain. Getting comfortable at night these days is almost impossible. The pain and stiffness in my legs have made finding a position to sleep almost zero. When I do finally fall asleep I toss and turn. Between the pain and tossing and turning I only get an average of two to three hours of sleep a night. I’m up usually by 1 am unable to go back to sleep.


That’s not what this post is about though. I’ve become kind of used to this nightly process.

This morning I thought to myself poor Greg! It doesn’t only affect me. It affects his sleep and his day as well.


I toss and turn not only moving the entire bed but most of the time I am unable to turn myself. This means I have to grab him and even wake him…

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The Walking Pill

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Fearless!

Jo Ann Maxwell

walkingI started taking Ampyra (the walking pill) the middle of August.  Today I read an article in Multiple Sclerosis News Today discussing the merits, advantages, and the efficacy of Ampyra.  As with any medication, it works for some and not others.  A friend was in the clinical trials for the drug, but it didn’t work for him.  I have been very pleased with the results I am seeing.  Here are a couple of entries from my blog that discussed the immediate results.

9.7.16   I told you three weeks ago how the new medication, Ampyra, was working for me. I continue to see good improvement. As living with MS goes, I have good days and bad days, but I definitely see great strides.

However, it’s like learning how to walk all over again. You know how you walk with your heel hitting the ground first and then you roll…

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