Counting My Spoons

Tripping Through Treacle

Many people with a chronic illness will have heard of the ‘spoon theory’; the idea that you start your day with X number of spoons (i.e. the energy needed to complete a task) and that every activity in your day uses those spoons up. It goes something like this :

Start my day with 12 spoons

1. Wake up and have a shower uses 1 spoon

2. Getting dressed, doing hair, putting make up on uses 2 spoons

Showering and getting ready is exhausting; for many people with MS, including me, the warmth of the water exacerbates symptoms. I love baths but they are a distant memory for me now, due to the adverse effect they have on my legs. My shower stool is my friend.

I usually try and rest for 5-10 minutes after my shower to allow my legs time to rest. Obviously, this is not always possible…

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A tale of never ending sleepyness…

Dinosaurs, Donkeys and MS

Today our post is on fatigue!

We thought we would do a post on this as it’s something that seems to come as an added bonus with most chronic conditions. It makes you sleepy all the time and just thinking about doing anything makes you even more sleepy! For me it’s also the one that’s just never ending…

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So what is fatigue?

Fatigue seems to be experienced differently by people. For me it comes in two forms:

  1. Complete lack of energy! It’s as though all of my energy has just suddenly drained out of me and simple activities such as moving feel impossible.
  2. My bones feel so heavy it’s as though they are made of lead and if I try to move I feel as though I’m trying to move through a swamp. This one likes to appear mostly in the mornings. I feel I should be given a medal sometimes just for managing to get out of…

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MS Symptoms Swallowing

Video

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Stressed

Tripping Through Treacle!

Tripping Through Treacle

I have been going through a particularly stressful patch of late…I won’t go into the details of why, but lets just say that health, relationships and work all play a part – I am aware that I am not always a ‘fun Jen’ to be around at the moment.

My stress manifests itself as feeling wound up and anxious. Things that I can normally handle with ease really get to me.  Like the fact that I have to repeat myself several times in order for the kids to carry out simple tasks, like brushing their teeth, or setting the table, or putting their shoes away.  Things they should be doing automatically anyway.  Ahhhggh!  Just thinking about it stresses me out!


I suppose the good thing is that I am able to recognise that I am feeling this way and can therefore try and do something about it.  My…

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In Need of a Friend

MSnubutterflies!

MSnubutterflies

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Our story. Through my eyes.

When I met Greg I was in no way looking for anything. I was happy with my life the way it was. Just my kids and I. I loved my job and spent my off days working in the yard or on some project in the house.

I wasn’t against love or believed it was something that couldn’t happen to me. I just didn’t need a man to be happy. I was content with the way things were.

Greg is one of the most unique men I have ever met. I’ve never known a man so accepting of others. Although he may not agree. He never judges anyone. From the day I met him I felt I could tell him anything. I was totally comfortable. It was easy as if I had known him for years.

He is one of the most caring and generous…

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Dizzy on MS: What is MS?

Dinosaurs, Donkeys and MS!

Dinosaurs, Donkeys and MS

For the last week of MS awareness month me and Dizzy have decided to make a little post and video about MS. One of the things I find most difficult with MS is trying to explain to people what exactly it is. People mostly think MS=wheelchairs and that’s about it, so we’re going to hopefully try and explain it abit better! 🙂

You can either read through our post (which is hopefully not too wafflely!) and contains more information on points, watch our little video on the basics (at the bottom of the page) or both! 🙂

HElloDizzy(3)So what is MS?

MS is a neurological, autoimmune condition of the central nervous system.

MS is an autoimmune condition because the immune system gets abit confused and no longer recognised part of the central nervous system (CNS), the myelin, as self. Myelin is a substance that protects the nerve fibres so that messages are able to travel from the CNS to…

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Who am I?

Tripping Through Treacle!

Tripping Through Treacle

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Even though I have been at work this week, I am still suffering from monumental jet-lag – when my alarm went off at 6:30am if felt like I was being rudely awaken by someone shouting in my ear in the middle of the night. Cue lots of coffee to get me though the day and chilled out evenings… which has got me thinking.

I have written before about my struggle with work (seehere). I am actually functioning ok at work – though I do struggle mobility-wise and have started to notice that my concentration is not what it used to be. It’s the impact the long days have on me. I come home after work completely wiped out and basically spend any days off ‘recovering’ (read: sleeping), just to get ready to do it all again. I have had chats with both…

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Multiple Sclerosis and Exercise

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Dizzy on an Easter adventure

Dinosaurs, Donkeys and MS!

Dinosaurs, Donkeys and MS

This weekend me and Dizzy have been on two Easter adventures! Yesterday we felt very impressed with ourselves for managing our first bit of acting since the relapse in October. The first original relapse wasn’t able to do any acting for nearly a year so to be able to do a little bit after 6 months feels a big achievement! 🙂

Dizzy also had a little adventure exploring all the spring flowers that have come up in the garden! 🙂 She had a feeling as though she was being watched though…

Dizzy first pottered over to look at the tulips…

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Then she had a little look at some blue flowers that we’re not sure the name of…

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Then she went back to potter past the tulips (these are Dizzy’s favourite in the garden at the moment)…

Dizzy then decided to be very adventurous and climb up a tree to get a…

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That for me is Enough

MSnubutterflies!

MSnubutterflies

Last night was a rough night. I was in tremendous pain. Getting comfortable at night these days is almost impossible. The pain and stiffness in my legs have made finding a position to sleep almost zero. When I do finally fall asleep I toss and turn. Between the pain and tossing and turning I only get an average of two to three hours of sleep a night. I’m up usually by 1 am unable to go back to sleep.


That’s not what this post is about though. I’ve become kind of used to this nightly process.

This morning I thought to myself poor Greg! It doesn’t only affect me. It affects his sleep and his day as well.


I toss and turn not only moving the entire bed but most of the time I am unable to turn myself. This means I have to grab him and even wake him…

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