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Tripping Through Treacle!

Tripping Through Treacle

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Even though I have been at work this week, I am still suffering from monumental jet-lag – when my alarm went off at 6:30am if felt like I was being rudely awaken by someone shouting in my ear in the middle of the night. Cue lots of coffee to get me though the day and chilled out evenings… which has got me thinking.

I have written before about my struggle with work (seehere). I am actually functioning ok at work – though I do struggle mobility-wise and have started to notice that my concentration is not what it used to be. It’s the impact the long days have on me. I come home after work completely wiped out and basically spend any days off ‘recovering’ (read: sleeping), just to get ready to do it all again. I have had chats with both…

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Multiple Sclerosis and Exercise

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Dizzy on an Easter adventure

Dinosaurs, Donkeys and MS!

Dinosaurs, Donkeys and MS

This weekend me and Dizzy have been on two Easter adventures! Yesterday we felt very impressed with ourselves for managing our first bit of acting since the relapse in October. The first original relapse wasn’t able to do any acting for nearly a year so to be able to do a little bit after 6 months feels a big achievement! 🙂

Dizzy also had a little adventure exploring all the spring flowers that have come up in the garden! 🙂 She had a feeling as though she was being watched though…

Dizzy first pottered over to look at the tulips…

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Then she had a little look at some blue flowers that we’re not sure the name of…

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Then she went back to potter past the tulips (these are Dizzy’s favourite in the garden at the moment)…

Dizzy then decided to be very adventurous and climb up a tree to get a…

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That for me is Enough

MSnubutterflies!

MSnubutterflies

Last night was a rough night. I was in tremendous pain. Getting comfortable at night these days is almost impossible. The pain and stiffness in my legs have made finding a position to sleep almost zero. When I do finally fall asleep I toss and turn. Between the pain and tossing and turning I only get an average of two to three hours of sleep a night. I’m up usually by 1 am unable to go back to sleep.


That’s not what this post is about though. I’ve become kind of used to this nightly process.

This morning I thought to myself poor Greg! It doesn’t only affect me. It affects his sleep and his day as well.


I toss and turn not only moving the entire bed but most of the time I am unable to turn myself. This means I have to grab him and even wake him…

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Chronic Pain, Heal Thyself?

Being Lydia!

Daily Prompt – Heal

ChronicPainThe word “heal” can take on a whole different meaning when you have a chronic illness.

I remember the first thing they told us at my pain management program was “We are not here to take your pain away. If you could be healed from it, you wouldn’t be here.” The words hit hard, but we all knew it was true. We were there to learn how to live with our symptoms the best way possible.

As a Christian, I believe the Lord can heal anyone. And this isn’t about faith healings, just that God is in control of everything in my life.

So do these two things contradict for me? No, not at all. When people say they are praying for God to heal me, I say for them to pray for God’s will. He never lets anything happen without reason and I believe I…

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The Walking Pill

Fearless!

Fearless

walkingI started taking Ampyra (the walking pill) the middle of August.  Today I read an article in Multiple Sclerosis News Today discussing the merits, advantages, and the efficacy of Ampyra.  As with any medication, it works for some and not others.  A friend was in the clinical trials for the drug, but it didn’t work for him.  I have been very pleased with the results I am seeing.  Here are a couple of entries from my blog that discussed the immediate results.

9.7.16   I told you three weeks ago how the new medication, Ampyra, was working for me. I continue to see good improvement. As living with MS goes, I have good days and bad days, but I definitely see great strides.

However, it’s like learning how to walk all over again. You know how you walk with your heel hitting the ground first and then you roll…

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10 positives about living with MS

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This gallery contains 8 photos.

Originally posted on Dinosaurs, Donkeys and MS:
A few weeks ago me and Dizzy did a blog post on 10 things about living with MS for MS awareness month. Living with any chronic illness is ridiculously difficult but I wanted to…

Working A Job You Hate

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10 uplifting quotes for the not so good days

Dinosaurs, Donkeys and MS!!

Dinosaurs, Donkeys and MS

Today out post is on quotes! It’s completely normal in life to have not so good days whether you have a chronic illness or not. Even Dizzy gets them!

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But we’ve always found quotes to be amazing to help make us feel more hopeful and positive about life! Today me and Dizzy have made this post to share our top ten favourite quotes for these moments.

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  1. Alice: This is impossible. The Mad Hatter: Only if you believe it is. – Lewis Carroll

2. You’re allowed to scream, you’re allowed yo cry, but do not give up. – Unknown

3. It doesn’t matter how slow you go, as long as you don’t stop. – Confucius

4. You may not always end up where you thought you were going, but you will always end up where you are meant to be. – Jessica Taylor

5. Be realistic: Plan for a miracle. – Osho

6…

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Cloudy Days and Rainbows

Tripping Through Treacle!

Tripping Through Treacle

Things have taken a turn for the worse.

I thought that I might have been having a bit of a ‘blip’, having a bad patch, so to speak.  But this is the new me.  The new me that lives under a cloud of stress and worry.  After 19 years of being pretty much symptom-free, my MS turned obviously ‘Secondary Progressive’ about 5 years ago.  Cue walking difficulties, fatigue and cog-fog (for me this means memory problems, difficulties concentrating and finding the right words at times).  Within 5 years I have gone from an active, confident woman, to one who worries incessantly about the future – my own and my children’s.  My husband will also vouch for a massive increase in my anxiety levels.  I often feel anxious about going out (will there be somewhere I can sit?) and I now have a need to plan and organise my time, as…

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