Unfortunately I need to go see my neurologist. I have noticed over the last few weeks that my symptoms are flaring up much more than usual. This usually means a new lesion is causing an exacerbation. When this occurs my limbs experience more pain than normal, which is incredibly uncomfortable.
Right now I am experiencing lightning flash pains in my legs that take my breathe away at times. Also, I have been losing feeling in my left hand, which is a brand new symptom for me. I’ve had hand pain in the past, but I’ve never experienced numbness. The most annoying symptom is the return of the headaches. I don’t want to go back on meds, but I also don’t want to burden Evelina with my constant complaining about the pain.
These aren’t new symptoms they come and go. I just wish I knew why. I guess I wish I knew why with a lot of MS related things. Spasticity has been bad this week. I woke up Monday morning, or I should say didn’t sleep well Sunday night from pain. I always describe the
You may be wondering if I have found a tall, dark, handsome, godly man to date. But who is ever heard the name Ocrevus? Alas, it is not a man date.
Ocrevus is the name of a new disease modifying therapy for multiple sclerosis. It has been approved for relapsing remitting multiple sclerosis and primary progressive multiple sclerosis, which I have. Ocrevus is a humanized monoclonal antibody that targets CD20 positive B lymphocytes (a type of white blood cell) which contribute to nerve damage in MS.
My first date consisted of finding a vein in my arm to connect the medicine port. Then I was given a steroid and Benadryl to decrease the possible side effects. Then I was given the Ocrevus, over 2 1/2 hours through the port. I took a half of dose yesterday. I will take another half a dose on Wednesday the ninth. And then after…
I have been going through a particularly stressful patch of late…I won’t go into the details of why, but lets just say that health, relationships and work all play a part – I am aware that I am not always a ‘fun Jen’ to be around at the moment.
My stress manifests itself as feeling wound up and anxious. Things that I can normally handle with ease really get to me. Like the fact that I have to repeat myself several times in order for the kids to carry out simple tasks, like brushing their teeth, or setting the table, or putting their shoes away. Things they should be doing automatically anyway. Ahhhggh! Just thinking about it stresses me out!
I suppose the good thing is that I am able to recognise that I am feeling this way and can therefore try and do something about it. My…
When I met Greg I was in no way looking for anything. I was happy with my life the way it was. Just my kids and I. I loved my job and spent my off days working in the yard or on some project in the house.
I wasn’t against love or believed it was something that couldn’t happen to me. I just didn’t need a man to be happy. I was content with the way things were.
Greg is one of the most unique men I have ever met. I’ve never known a man so accepting of others. Although he may not agree. He never judges anyone. From the day I met him I felt I could tell him anything. I was totally comfortable. It was easy as if I had known him for years.
For the last week of MS awareness month me and Dizzy have decided to make a little post and video about MS. One of the things I find most difficult with MS is trying to explain to people what exactly it is. People mostly think MS=wheelchairs and that’s about it, so we’re going to hopefully try and explain it abit better! 🙂
You can either read through our post (which is hopefully not too wafflely!) and contains more information on points, watch our little video on the basics (at the bottom of the page) or both! 🙂
So what is MS?
MS is a neurological, autoimmune condition of the central nervous system.
MS is an autoimmune condition because the immune system gets abit confused and no longer recognised part of the central nervous system (CNS), the myelin, as self. Myelin is a substance that protects the nerve fibres so that messages are able to travel from the CNS to…
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Even though I have been at work this week, I am still suffering from monumental jet-lag – when my alarm went off at 6:30am if felt like I was being rudely awaken by someone shouting in my ear in the middle of the night. Cue lots of coffee to get me though the day and chilled out evenings… which has got me thinking.
I have written before about my struggle with work (seehere). I am actually functioning ok at work – though I do struggle mobility-wise and have started to notice that my concentration is not what it used to be. It’s the impact the long days have on me. I come home after work completely wiped out and basically spend any days off ‘recovering’ (read: sleeping), just to get ready to do it all again. I have had chats with both…