Tag Archives: multiple sclerosis symptoms

My first date with Ocrevus!

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Fearless

You may be wondering if I have found a tall, dark, handsome, godly man to date. But who is ever heard the name Ocrevus? Alas, it is not a man date.

Ocrevus is the name of a new disease modifying therapy for multiple sclerosis. It has been approved for relapsing remitting multiple sclerosis and primary progressive multiple sclerosis, which I have. Ocrevus is a humanized monoclonal antibody that targets CD20 positive B lymphocytes (a type of white blood cell) which contribute to nerve damage in MS.

My first date consisted of finding a vein in my arm to connect the medicine port. Then I was given a steroid and Benadryl to decrease the possible side effects. Then I was given the Ocrevus, over 2 1/2 hours through the port. I took a half of dose yesterday. I will take another half a dose on Wednesday the ninth. And then after…

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MS Symptoms Swallowing

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Stressed

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Tripping Through Treacle!

Tripping Through Treacle

I have been going through a particularly stressful patch of late…I won’t go into the details of why, but lets just say that health, relationships and work all play a part – I am aware that I am not always a ‘fun Jen’ to be around at the moment.

My stress manifests itself as feeling wound up and anxious. Things that I can normally handle with ease really get to me.  Like the fact that I have to repeat myself several times in order for the kids to carry out simple tasks, like brushing their teeth, or setting the table, or putting their shoes away.  Things they should be doing automatically anyway.  Ahhhggh!  Just thinking about it stresses me out!


I suppose the good thing is that I am able to recognise that I am feeling this way and can therefore try and do something about it.  My…

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In Need of a Friend

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MSnubutterflies!

MSnubutterflies

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Our story. Through my eyes.

When I met Greg I was in no way looking for anything. I was happy with my life the way it was. Just my kids and I. I loved my job and spent my off days working in the yard or on some project in the house.

I wasn’t against love or believed it was something that couldn’t happen to me. I just didn’t need a man to be happy. I was content with the way things were.

Greg is one of the most unique men I have ever met. I’ve never known a man so accepting of others. Although he may not agree. He never judges anyone. From the day I met him I felt I could tell him anything. I was totally comfortable. It was easy as if I had known him for years.

He is one of the most caring and generous…

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Dizzy on MS: What is MS?

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Dinosaurs, Donkeys and MS!

Dinosaurs, Donkeys and MS

For the last week of MS awareness month me and Dizzy have decided to make a little post and video about MS. One of the things I find most difficult with MS is trying to explain to people what exactly it is. People mostly think MS=wheelchairs and that’s about it, so we’re going to hopefully try and explain it abit better! 🙂

You can either read through our post (which is hopefully not too wafflely!) and contains more information on points, watch our little video on the basics (at the bottom of the page) or both! 🙂

HElloDizzy(3)So what is MS?

MS is a neurological, autoimmune condition of the central nervous system.

MS is an autoimmune condition because the immune system gets abit confused and no longer recognised part of the central nervous system (CNS), the myelin, as self. Myelin is a substance that protects the nerve fibres so that messages are able to travel from the CNS to…

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Who am I?

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Tripping Through Treacle!

Tripping Through Treacle

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Even though I have been at work this week, I am still suffering from monumental jet-lag – when my alarm went off at 6:30am if felt like I was being rudely awaken by someone shouting in my ear in the middle of the night. Cue lots of coffee to get me though the day and chilled out evenings… which has got me thinking.

I have written before about my struggle with work (seehere). I am actually functioning ok at work – though I do struggle mobility-wise and have started to notice that my concentration is not what it used to be. It’s the impact the long days have on me. I come home after work completely wiped out and basically spend any days off ‘recovering’ (read: sleeping), just to get ready to do it all again. I have had chats with both…

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What I’d tell to my younger self if I could

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What I’d tell to my younger self if I could on Multiple experienceS | Yesterday I read a post by MerBear over at knocked over by a…

Source: What I’d tell to my younger self if I could

Multiple Sclerosis and Exercise

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Dizzy on an Easter adventure

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Dinosaurs, Donkeys and MS!

Dinosaurs, Donkeys and MS

This weekend me and Dizzy have been on two Easter adventures! Yesterday we felt very impressed with ourselves for managing our first bit of acting since the relapse in October. The first original relapse wasn’t able to do any acting for nearly a year so to be able to do a little bit after 6 months feels a big achievement! 🙂

Dizzy also had a little adventure exploring all the spring flowers that have come up in the garden! 🙂 She had a feeling as though she was being watched though…

Dizzy first pottered over to look at the tulips…

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Then she had a little look at some blue flowers that we’re not sure the name of…

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Then she went back to potter past the tulips (these are Dizzy’s favourite in the garden at the moment)…

Dizzy then decided to be very adventurous and climb up a tree to get a…

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That for me is Enough

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MSnubutterflies!

MSnubutterflies

Last night was a rough night. I was in tremendous pain. Getting comfortable at night these days is almost impossible. The pain and stiffness in my legs have made finding a position to sleep almost zero. When I do finally fall asleep I toss and turn. Between the pain and tossing and turning I only get an average of two to three hours of sleep a night. I’m up usually by 1 am unable to go back to sleep.


That’s not what this post is about though. I’ve become kind of used to this nightly process.

This morning I thought to myself poor Greg! It doesn’t only affect me. It affects his sleep and his day as well.


I toss and turn not only moving the entire bed but most of the time I am unable to turn myself. This means I have to grab him and even wake him…

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