Tag Archives: multiple sclerosis symptoms

My first date with Ocrevus!

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Jo Ann Maxwell

You may be wondering if I have found a tall, dark, handsome, godly man to date. But who is ever heard the name Ocrevus? Alas, it is not a man date.

Ocrevus is the name of a new disease modifying therapy for multiple sclerosis. It has been approved for relapsing remitting multiple sclerosis and primary progressive multiple sclerosis, which I have. Ocrevus is a humanized monoclonal antibody that targets CD20 positive B lymphocytes (a type of white blood cell) which contribute to nerve damage in MS.

My first date consisted of finding a vein in my arm to connect the medicine port. Then I was given a steroid and Benadryl to decrease the possible side effects. Then I was given the Ocrevus, over 2 1/2 hours through the port. I took a half of dose yesterday. I will take another half a dose on Wednesday the ninth. And then after…

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MS Symptoms Swallowing

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In Need of a Friend

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MSnubutterflies!

MSnubutterflies

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Our story. Through my eyes.

When I met Greg I was in no way looking for anything. I was happy with my life the way it was. Just my kids and I. I loved my job and spent my off days working in the yard or on some project in the house.

I wasn’t against love or believed it was something that couldn’t happen to me. I just didn’t need a man to be happy. I was content with the way things were.

Greg is one of the most unique men I have ever met. I’ve never known a man so accepting of others. Although he may not agree. He never judges anyone. From the day I met him I felt I could tell him anything. I was totally comfortable. It was easy as if I had known him for years.

He is one of the most caring and generous…

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What I’d tell to my younger self if I could

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What I’d tell to my younger self if I could on Multiple experienceS | Yesterday I read a post by MerBear over at knocked over by a…

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Multiple Sclerosis and Exercise

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That for me is Enough

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MSnubutterflies!

MSnubutterflies

Last night was a rough night. I was in tremendous pain. Getting comfortable at night these days is almost impossible. The pain and stiffness in my legs have made finding a position to sleep almost zero. When I do finally fall asleep I toss and turn. Between the pain and tossing and turning I only get an average of two to three hours of sleep a night. I’m up usually by 1 am unable to go back to sleep.


That’s not what this post is about though. I’ve become kind of used to this nightly process.

This morning I thought to myself poor Greg! It doesn’t only affect me. It affects his sleep and his day as well.


I toss and turn not only moving the entire bed but most of the time I am unable to turn myself. This means I have to grab him and even wake him…

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