I have no words. I’m so frustrated that the only thing I could do was cry. My insurance made some error and terminated me on one of their systems. I knew…
Unfortunately I need to go see my neurologist. I have noticed over the last few weeks that my symptoms are flaring up much more than usual. This usually means a new lesion is causing an exacerbation. When this occurs my limbs experience more pain than normal, which is incredibly uncomfortable.
Right now I am experiencing lightning flash pains in my legs that take my breathe away at times. Also, I have been losing feeling in my left hand, which is a brand new symptom for me. I’ve had hand pain in the past, but I’ve never experienced numbness. The most annoying symptom is the return of the headaches. I don’t want to go back on meds, but I also don’t want to burden Evelina with my constant complaining about the pain.
Hopefully the doctor has some great solution.
You may be wondering if I have found a tall, dark, handsome, godly man to date. But who is ever heard the name Ocrevus? Alas, it is not a man date.
Ocrevus is the name of a new disease modifying therapy for multiple sclerosis. It has been approved for relapsing remitting multiple sclerosis and primary progressive multiple sclerosis, which I have. Ocrevus is a humanized monoclonal antibody that targets CD20 positive B lymphocytes (a type of white blood cell) which contribute to nerve damage in MS.
My first date consisted of finding a vein in my arm to connect the medicine port. Then I was given a steroid and Benadryl to decrease the possible side effects. Then I was given the Ocrevus, over 2 1/2 hours through the port. I took a half of dose yesterday. I will take another half a dose on Wednesday the ninth. And then after…
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Dinosaurs, Donkeys and MS!
What I’d tell to my younger self if I could on Multiple experienceS | Yesterday I read a post by MerBear over at knocked over by a…
I started taking Ampyra (the walking pill) the middle of August. Today I read an article in Multiple Sclerosis News Today discussing the merits, advantages, and the efficacy of Ampyra. As with any medication, it works for some and not others. A friend was in the clinical trials for the drug, but it didn’t work for him. I have been very pleased with the results I am seeing. Here are a couple of entries from my blog that discussed the immediate results.
9.7.16 I told you three weeks ago how the new medication, Ampyra, was working for me. I continue to see good improvement. As living with MS goes, I have good days and bad days, but I definitely see great strides.
However, it’s like learning how to walk all over again. You know how you walk with your heel hitting the ground first and then you roll…
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Dinosaurs, Donkeys and MS!