Rituxan instead of Ocrevus | Multiple experienceS

Going to see my neurologist, on my mind was questions of whether to stay on Ocrevus. I felt if I was still declining so much why be on a drug that can come with some serious side effects.

Source: Rituxan instead of Ocrevus | Multiple experienceS

No Ocrevus infusion again more insurance issues

I have no words. I’m so frustrated that the only thing I could do was cry. My insurance made some error and terminated me on one of their systems. I knew…

Source: No Ocrevus infusion again more insurance issues

It Might Be Time For a MS Check-Up

DannyUnfortunately I need to go see my neurologist.  I have noticed over the last few weeks that my symptoms are flaring up much more than usual.  This usually means a new lesion is causing an exacerbation.  When this occurs my limbs experience more pain than normal, which is incredibly uncomfortable.

Right now I am experiencing lightning flash pains in my legs that take my breathe away at times.  Also, I have been losing feeling in my left hand, which is a brand new symptom for me.  I’ve had hand pain in the past, but I’ve never experienced numbness.  The most annoying symptom is the return of the headaches.  I don’t want to go back on meds, but I also don’t want to burden Evelina with my constant complaining about the pain.

Hopefully the doctor has some great solution.

My first date with Ocrevus!

Jo Ann Maxwell

You may be wondering if I have found a tall, dark, handsome, godly man to date. But who is ever heard the name Ocrevus? Alas, it is not a man date.

Ocrevus is the name of a new disease modifying therapy for multiple sclerosis. It has been approved for relapsing remitting multiple sclerosis and primary progressive multiple sclerosis, which I have. Ocrevus is a humanized monoclonal antibody that targets CD20 positive B lymphocytes (a type of white blood cell) which contribute to nerve damage in MS.

My first date consisted of finding a vein in my arm to connect the medicine port. Then I was given a steroid and Benadryl to decrease the possible side effects. Then I was given the Ocrevus, over 2 1/2 hours through the port. I took a half of dose yesterday. I will take another half a dose on Wednesday the ninth. And then after…

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What I’d tell to my younger self if I could

What I’d tell to my younger self if I could on Multiple experienceS | Yesterday I read a post by MerBear over at knocked over by a…

Source: What I’d tell to my younger self if I could

The Walking Pill

Fearless!

Jo Ann Maxwell

walkingI started taking Ampyra (the walking pill) the middle of August.  Today I read an article in Multiple Sclerosis News Today discussing the merits, advantages, and the efficacy of Ampyra.  As with any medication, it works for some and not others.  A friend was in the clinical trials for the drug, but it didn’t work for him.  I have been very pleased with the results I am seeing.  Here are a couple of entries from my blog that discussed the immediate results.

9.7.16   I told you three weeks ago how the new medication, Ampyra, was working for me. I continue to see good improvement. As living with MS goes, I have good days and bad days, but I definitely see great strides.

However, it’s like learning how to walk all over again. You know how you walk with your heel hitting the ground first and then you roll…

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