In one week Evelina and I will be putting the final touches on packing and getting ready to head to Florida for her birthday Disney trip. To say we are excited is an understatement! For me the holiday will be well earned as I have busted my tail to hit some of my goals before the end of the year.
For those of you who might be new to Dream Big, Evelina is from Poland and dreamed of going to Disney since she was a little girl. So in 2012 I proposed to her in the rose garden (no longer exists) at Magic Kingdom beside the castle during the fireworks show. It was incredible. We then honeymooned at Disney, spent our first anniversary at Disney and family vacation at Disney. We are a Disney family to say the least.
It will be nice to get away for an extended time and I cannot wait!!
Today I have an appointment with a big client so I’ll be getting ready for that. On an unrelated note I had a really bad reaction to a medication last week that was scary. While I was driving home from an appointment I developed a shaky eye that wouldn’t focus properly. The issue lasted for about 5 minutes and then went away.
My doctor has now called in a new medication to help me with a little anxiety issue I’ve developed due to the MS. It is funny that a lot of the people I know who live with MS develop anxiety issues. I guess it has to do with the sensitivity to noisy environments and/or the stress of constantly being in pain.
It’s Invisible Illness Awareness Week! Well, only just – it runs from the 15th to the 21st October 2017, so it’s ending today and I’ve almost left it too late to write anything. I’m back atworknow, so it is much, much harder to keep to writing a weekly blog post, which is what I strive for.
The past couple weeks have been full of work, taking the kids to their after school activities and… well, that’s it. But that isenough. I’m done in – and don’t I know it. I have come down with a cough and ongoing headache and I’m back to falling asleep on the sofa as soon as the kids are in bed. That’s work when you haveSecondary Progressive MSfor you. But you know what? One of the most frustrating things is that, on the outside, people see my dodgy leg…
‘You’re really good at taking care of us, Mum’. A simple sentence, but when my little boy said it to me after he fell and cut his leg, I felt absolutely amazing.
The number of times I’ve felt like a crap Mum, because I can’t run around with my children any more or because I’ve made them pasta for tea yet again because it’s the easiest thing for me to make, is in its hundreds. I guess it is all part and parcel of being a spoonie parent, due to my Multiple Sclerosis. But my son’s comment just goes to show that the simple act of having a pack of baby wipes so that you can easily wipe off dirt and gravel from your child’s scuffed leg is what really matters to them.
I think every parent feels the ‘guilts’ and I have written about it before. But…
Some of you may recall this segment from the early days of Dream Big. Over the last 2 years I have focused on living a healthy life in spurts which has resulted in me gaining a few extra pounds. As my body doesn’t respond well to carrying around the extra poundage, I have decided it is time to get things under control.
Last Monday I weighed myself and logged 188.4 pounds and today I weighed in at 186.6. I will only be registering my weight once per week on Mondays. I have set a goal of losing 1.5 pounds per week which should put me at or around 177 pounds by the time we go to Disney in November for Evelina’s birthday.
My doctor has informed me that my ideal weight should fall somewhere between 160-165 pounds so ultimately that will be my mission. However, losing weight is secondary to simply eating and living a healthier lifestyle. I use the weight as a barometer only.
We are also using a simple method to begin. We will be eliminating all the junk from our regimen: soda (including diet), candy, sugar, processed foods, fast food and the like. In their place we will be substituting foods we cook and prepare, along with fruit, nuts, veggies and some lean protein. Eventually I see us eliminating eating anything with a face; a topic I’ll dive deeper into in a future post.
Until then if you would like to join me feel free to create your own post and then leave a link in the comments so others can follow along too. Maybe we’ll all find some inspiration in each other!
The last couple of weeks have been tough — a monster headache last week, and this week, I had the worst fibro flare I’ve had in a long time. I’ve spent all week just trying to get through each day. On days like these, it’s really hard to feel very optimistic, but one of the building blocks of my HOPE plan is optimism, so I need to find a way to be optimistic even if I don’t feel it.
Why would optimism be important to living well with chronic pain. or any chronic illness for that matter? The definition of optimism on Dicitionary.com is this: “a disposition or tendency to look on the more favorable side of events or conditions and to expect the most favorable outcome.” I’m not talking about unicorns and glitter here — I’m talking about feeling that I can do something to improve the way I…