This is My MS – Lifestyle

Tripping Through Treacle

This is my last blog post in the ‘This is My MS’ series (see here for my post about my physical symptoms and here for my post about my mental health).  I know that I am very nosy eager to hear about how others try to manage their MS and the symptoms they have, so I thought that I would let you know about the steps I take to try and and live as healthily as I can, despite my diagnosis of Multiple Sclerosis.  A bit about me first:

  • I am in my late 30s
  • I was diagnosed with MS when I was 15 years old (first symptom aged 13)
  • I am married with two kids, aged 9 and 7
  • I work 3 days a week (though my symptoms are making this level of work progressively more difficult)
  • I have always been interested in health and well-being and before my…

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Vegan Sugar Cookies

Vegan Sugar Cookies on Multiple experienceS | I found this recipe on the beachbody blog.Every exercise program I do, except Zumba, is from Beachbody. I just…

Source: Vegan Sugar Cookies

Danny’s World: Old Boy Is Worn Out

Yesterday I helped a couple coworkers in Shelby which meant I spent the day walking around the uptown area speaking with business owners.  It was hot and incredibly humid and we were out walking for 5 hours or so.  When I got home last night all I wanted to do was eat dinner and veg; which I did!

I also slept in this morning until 7 am to give my body some recovery time.  Living with MS demands that I pay close attention to the temple.  When it says it is time to sleep, I sleep.  I hope all of you out in the blogosphere are preparing your minds to have a great day!

…by the way, how do you like the mug???

Bumble and Tailor–Daily Prompts

Fearless

I have always felt like a fish out of water. I learned to swim at the age of five. And I begin competing at the age of eight. I was a lifeguard and a water safety instructor. So I’ve been around water on my life.


On land I bumble quite often. If there’s something that I can run into, I’ll do it. Bruises will show up at odd times and I won’t even know how the bruise happened. When I started falling in a more serious way about 15 years ago, I had an appointment with a neurologist. She said she had no idea why I was falling. Great!!

And when I bumble I fall spectacularly! One time while I was still wearing glasses, my glasses got all scratched up. That was before I had Lasik eye surgery (which I recommend highly). So I had to buy another pair of…

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I am THAT Mum

Tripping Through Treacle

So, it’s finally happened.  I have been waiting for it to happen ever since I noticed that my dodgy legs were getting in the way of me taking the kids to school.

Some background: for the first couple of years that Alex was at school, I was able to to rush out the door with only 10 minutes to spare until the school bell rang – and I would usually still manage to get him there on time (usually with Ava in tow).  The school run was often left to me as Hubs wasn’t self-employed at that time, meaning that he was usually out of the house.  Plus, I would be taking Ava to her toddler activities in the afternoon, which meant we had a good little routine going of toddler group – running errands – school run.

A couple of years ago, when Ava started school, I noticed that…

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Was MS present long before my diagnosis?

Was MS present long before my diagnosis? on Multiple experienceS | I’m pretty sure I had a MS long before I was diagnosed . I had many strange things happen…

Source: Was MS present long before my diagnosis?

This is My MS – Mind

Tripping Through Treacle

I’ve been meaning to write this blog post for a few days now… but it has been a hell of a lot more difficult to start than my previous one in this series (This is my MS – physical symptoms).  It was easy for me to write about the physical symptoms of my MS – I am at the stage now where I live with them everyday.  No more periods of remission for me, just a constantly ‘dead’ leg, cramps and spasms and fatigue.  Luckily, I have found that these can be somewhat controlled, namely through medication and lifestyle factors, which I will write about another day.  But I thought that for today, I would focus on the mind – how living with a diagnosis of Multiple Sclerosis (MS) for almost 25 years has impacted upon me; my thoughts and feelings and my attitude to life.

***

It…

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Danny’s World: My MS Update

Featured

Danny's iphone 022It has been a minute since I updated everyone on the MS front so here goes.  I have been off all my medications for about a year.  I will take the occasional pain pill, but I try to limit those because they are dangerous.  I stopped taking my injections of Copaxone in May of 2016 simply because I was worn out from giving myself an injection 3 times per week for nearly 3 years.

Without the medications I simply have to tough it out.  It isn’t easy, but I prefer the pain to all of the side effects of the pills.  I’m not sure which is worse, MS or the medicines used to treatment MS.

My two primary symptoms that I deal with are fatigue and lightning flash pains.  The fatigue I manage as best I can and have learned to rest a lot on the weekends.  There are still times when I am asleep at night before 9.  I joke with Evelina that I’m just getting older and eventually you’ll find me at the cafeteria at 4:45 pm eating dinner.

For my fellow MSers you understand the flash pains.  They are the ultimate in shooting pains in my hips, legs, elbows and hands.  They hurt pretty bad, but it’s nothing I can’t handle.  Like I said, for now I’ll deal with them versus taking carbamazepine.

All-in-all I cannot complain too much.  I am sure there is someone in this world who would gladly switch places with me.  Isn’t life funny like that?  We think we have struggles until we read the story of someone who is fighting an incredible battle.

I hope everyone takes time be thankful for the simple pleasures of being able to walk.  It it so easy to take it for granted.

Have a great Friday and a relaxing weekend!

Your Habits Are Like Seeds You Plant In the Ground

Danny's iphone 022I’m not sure if you are aware or not, but your habits are like seeds you plant in the ground, which one day will produce fruit.  For those with better habits the fruit produced will be better health, more positive friends, more joy, more success, happiness, positivity, humility, love, patience, compassion, kindness etc.  For those who have bad habits the fruit can be found in the form of negativity, anger, stress, envy, selfishness, violence and joylessness just to name a few.

If you want joy you have to sow joy in your life.  You have to eat, sleep, breathe joy.  If you don’t practice joy and develop habits of being joyful, then you will not understand what it is to be joyful.  There is no magic wand to suddenly make you full of joy; you must practice it.

If you want more success professionally then you must practice the habits that will give you the best chance to be successful.  If you want more positive, supportive friends then you must first practice being positive and supportive so you understand what characteristics to look for in potential friends.

If you want better health then you must begin to practice the habits that will allow you to gain better health.  You must begin to get 7+ hours of sleep.  You must begin to eat more vegetables.  You must begin to exercise.  You must avoid low-quality foods.  You must begin drinking more water and fewer sodas.

All of these instances I have mentioned have particular habits associated with them and those habits are the seeds being sown.  The results (i.e. better health, more joy, more patience, more compassion, etc.) are the fruits.  And the reason the fruits are important is because wise people are judging you based on the fruits of your life; your boss, friends, family are all watching your habits.  People are looking at your actions not your words.

One instance that immediately comes to my mind is the friend who continues to talk (complain) to me about something in their life that upsets them or something they are unhappy with.  Most recently it was a friend who struggles with their health.  I’ve listened for years to this person complain about how their body hurts-my feet hurt, my legs burn, my hips are killing me.  Guess what I constantly see on their Facebook feed?  Fast food photos, drinking sodas, funnel cakes, eating tons of processed foods, etc.  I have watched this person’s actions (seed), which have produced a body which is breaking down (fruit).  They are getting the result they should.  They complain, but are not willing to begin sowing different types of seeds.

I will not be this type of person.

The gatekeepers of life will judge you based on the types of fruit you are producing, which is directly attributed to the types of habits you are sowing.

Maybe you aren’t getting what you want out of life because you are planting bad seed which is producing bitter fruit?