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Tripping Through Treacle!

Tripping Through Treacle

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Even though I have been at work this week, I am still suffering from monumental jet-lag – when my alarm went off at 6:30am if felt like I was being rudely awaken by someone shouting in my ear in the middle of the night. Cue lots of coffee to get me though the day and chilled out evenings… which has got me thinking.

I have written before about my struggle with work (seehere). I am actually functioning ok at work – though I do struggle mobility-wise and have started to notice that my concentration is not what it used to be. It’s the impact the long days have on me. I come home after work completely wiped out and basically spend any days off ‘recovering’ (read: sleeping), just to get ready to do it all again. I have had chats with both…

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What I’d tell to my younger self if I could

What I’d tell to my younger self if I could on Multiple experienceS | Yesterday I read a post by MerBear over at knocked over by a…

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Multiple Sclerosis and Exercise

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Dizzy on an Easter adventure

Dinosaurs, Donkeys and MS!

Dinosaurs, Donkeys and MS

This weekend me and Dizzy have been on two Easter adventures! Yesterday we felt very impressed with ourselves for managing our first bit of acting since the relapse in October. The first original relapse wasn’t able to do any acting for nearly a year so to be able to do a little bit after 6 months feels a big achievement! 🙂

Dizzy also had a little adventure exploring all the spring flowers that have come up in the garden! 🙂 She had a feeling as though she was being watched though…

Dizzy first pottered over to look at the tulips…

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Then she had a little look at some blue flowers that we’re not sure the name of…

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Then she went back to potter past the tulips (these are Dizzy’s favourite in the garden at the moment)…

Dizzy then decided to be very adventurous and climb up a tree to get a…

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5 Things I learned from my trip to Florida, as a person with a chronic illness

Tripping Through Treacle!

Tripping Through Treacle

Some of my regular readers will know that I have recently been on a two week holiday to Florida with my family – my two kids, my husband and my parents.  It was a long awaited trip (the kids have been asking every week, ‘how many days is it until Disney?’, for the past year), with the plan being that we would stay two hours from Orlando on the beach and take a few days out for the Parks.  I had been looking forward to the trip with a mixture of excitement (my first long haul trip since my wedding 11 years ago!) and trepidation (how will it be for me, as a relatively newly-disabled person?).

Well, the holiday was fab; I am now one shade darker than milk-bottle white and had a lovely, relaxing time (for the most part).  Watching our kids have fun, spending most of their time…

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That for me is Enough

MSnubutterflies!

MSnubutterflies

Last night was a rough night. I was in tremendous pain. Getting comfortable at night these days is almost impossible. The pain and stiffness in my legs have made finding a position to sleep almost zero. When I do finally fall asleep I toss and turn. Between the pain and tossing and turning I only get an average of two to three hours of sleep a night. I’m up usually by 1 am unable to go back to sleep.


That’s not what this post is about though. I’ve become kind of used to this nightly process.

This morning I thought to myself poor Greg! It doesn’t only affect me. It affects his sleep and his day as well.


I toss and turn not only moving the entire bed but most of the time I am unable to turn myself. This means I have to grab him and even wake him…

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The weight I am

The weight I am on Multiple ExperienceS | I battled with my weight my entire life. I was diagnosed with multiple sclerosis in 1998. My neurologist’s letter…

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Chronic Pain, Heal Thyself?

Being Lydia!

Daily Prompt – Heal

ChronicPainThe word “heal” can take on a whole different meaning when you have a chronic illness.

I remember the first thing they told us at my pain management program was “We are not here to take your pain away. If you could be healed from it, you wouldn’t be here.” The words hit hard, but we all knew it was true. We were there to learn how to live with our symptoms the best way possible.

As a Christian, I believe the Lord can heal anyone. And this isn’t about faith healings, just that God is in control of everything in my life.

So do these two things contradict for me? No, not at all. When people say they are praying for God to heal me, I say for them to pray for God’s will. He never lets anything happen without reason and I believe I…

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The Walking Pill

Fearless!

Fearless

walkingI started taking Ampyra (the walking pill) the middle of August.  Today I read an article in Multiple Sclerosis News Today discussing the merits, advantages, and the efficacy of Ampyra.  As with any medication, it works for some and not others.  A friend was in the clinical trials for the drug, but it didn’t work for him.  I have been very pleased with the results I am seeing.  Here are a couple of entries from my blog that discussed the immediate results.

9.7.16   I told you three weeks ago how the new medication, Ampyra, was working for me. I continue to see good improvement. As living with MS goes, I have good days and bad days, but I definitely see great strides.

However, it’s like learning how to walk all over again. You know how you walk with your heel hitting the ground first and then you roll…

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10 positives about living with MS

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Originally posted on Dinosaurs, Donkeys and MS:
A few weeks ago me and Dizzy did a blog post on 10 things about living with MS for MS awareness month. Living with any chronic illness is ridiculously difficult but I wanted to…