It Might Be Time For a MS Check-Up

DannyUnfortunately I need to go see my neurologist.  I have noticed over the last few weeks that my symptoms are flaring up much more than usual.  This usually means a new lesion is causing an exacerbation.  When this occurs my limbs experience more pain than normal, which is incredibly uncomfortable.

Right now I am experiencing lightning flash pains in my legs that take my breathe away at times.  Also, I have been losing feeling in my left hand, which is a brand new symptom for me.  I’ve had hand pain in the past, but I’ve never experienced numbness.  The most annoying symptom is the return of the headaches.  I don’t want to go back on meds, but I also don’t want to burden Evelina with my constant complaining about the pain.

Hopefully the doctor has some great solution.

This weeks MS symptoms

These aren’t new symptoms they come and go. I just wish I knew why. I guess I wish I knew why with a lot of MS related things. Spasticity has been bad this week. I woke up Monday morning, or I should say didn’t sleep well Sunday night from pain. I always describe the

Source: This weeks MS symptoms

Fearless Friday

Fearless

I haven’t felt fearless this week.  I feel like I have gone back to where I was before I took the Ampyra and maybe even worse. Or maybe it just seems that way.  On Monday, I told you about the struggle to find financial assistance for the Ampyra I started taking a little over a year ago that was improving a lot of my MS Symptoms.  I also told you about a bad fall I had that day. 

On Wednesday I told you that I was still unable to find financial assistance. 

My symptoms have regressed in the following ways:

  • my right foot is dragging more
  • it is more difficult to do my ankle and foot exercises
  • my right hand is less able to do the occupational therapy exercises I do with therapy putty
  • my R hand can hardly hold anything and
  • my fatigue has increased probably due to the…

View original post 155 more words

Is one of the medicines working?

Yesterday I wanted to write a post about which medicines are working. I woke up yesterday feeling great, great as far as a good MS day. I worked out Saturday, Sunday and Monday having no pain in my arm or shoulder.  What was more amazing was…

Source: Is one of the medicines working?

A New Mindset

Peace from Panic

A few weeks ago, I watched a vlog by Danny at Dream Big, Dream Often that inspired me. I keep thinking about it and have been trying to incorporate it into my life. So I thought I’d share it here, in case you hadn’t seen it.

The main point is simple: Instead of focusing on what you need to stop doing, focus on what you need to start doing.

Danny said, “We don’t have to focus on quitting anything. Just keep doing enough of the right stuff and the negative will not have room in your life.”

The positive changes will eventually push out the negative behaviors.

It’s important to make a plan and stick to it. Here are some ideas:

Instead of Saying: 

  1. I have to stop eating junk food.
  2. I need to quit watching so much TV.
  3. I should spend less time on social media.
  4. I need to…

View original post 173 more words

Today’s Featured Blog…Pain Pals!!

Pain Pals

Good Morning and welcome to another week, another Monday Magic and some more great blog posts to explore!  Monday Magic

Here in England the schools return this week, much to my daughter’s disgust, and it feels slightly odd that we only have one child still at school.  I have almost missed the ritual trip out to buy school shoes and stationary, but my 15 year old doesn’t need me for this any longer.  Note that I have said ALMOST, not really missing queuing up with a numbered ticket in a branch of Clarks along with a bunch of harassed mums and boisterous children……however there are going to be some shopping lists I should think, ahead of the soon to be politics student going off to uni in a couple of weeks.  He is more concerned about his football season ticket and joining the Facebook freshers’ group than how many sets of…

View original post 403 more words

Done, done and done

Done, done and done on Multiple experienceS | Yesterday was the second part to my Ocrevus infusion. My next appointment is February 26, 2018.  The all the…

Source: Done, done and done

Monday Musings

Fearless

“Aerodynamically the bumblebee shouldn’t be able to fly, but the bumblebee doesn’t know that so it goes on flying anyway.” – Mary Kay Ash

“The measure of a man, or woman, is not so much what they have accomplished, though that has weight. It often is much more though what that man or woman has overcome to accomplish what they have.” ― Leif Gregersen, Through The Withering Storm

“I was slightly brain damaged at birth, and I want people like me to see that they shouldn’t let a disability get in the way. I want to raise awareness – I want to turn my disability into ability.” ―Susan Boyle

“I can’t change the direction of the wind, but I can adjust my sails to always reach my destination.” –Jimmy Dean

“A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles.” –Christopher Reeves

“My advice…

View original post 60 more words

Ommm

Tripping Through Treacle

Ok, today, a bit of yoga, courtesy of Yoga with Adriene. An important part of the OMS lifestyle is keeping active, and my favourite (and easiest!) way is through yoga.

In an ideal world, I would be going to the gym, to work the little muscle I have, but three days at work this week means that I am utterly exhausted, so I can just about manage a gentle yoga sequence, but nothing more!

If you haven’t heard of Yoga with Adriene, I highly recommend – she has a great mix of free videos on You Tube, and it can be as gentle or strenuous as you like.  She also seems really down to earth, like being in a yoga class with someone you’d be mates with.

The only thing with yoga is that it often requires balance – something that I don’t have much of!  So I quite…

View original post 44 more words