Rituxan instead of Ocrevus | Multiple experienceS

Going to see my neurologist, on my mind was questions of whether to stay on Ocrevus. I felt if I was still declining so much why be on a drug that can come with some serious side effects.

Source: Rituxan instead of Ocrevus | Multiple experienceS

A Matter of Perspective: Changing The Way We Think About Our Chronic Illness

Reclaiming HOPE

 

I have a dear friend whose grandson is exceptionally bright and observant. Whenever we see each other, I look forward to her “Colton Stories.” The last one went something like this: He started asking his grandparents if they drove on the grass. Whenever they told him no, he would say, “Mama drives on the grass.” Of course, his mom denied it, but they just could not convince him that she didn’t drive on the grass. It took them a while, but they finally figured how why he was so convinced that she did. From his vantage point in his car seat all he could see beside him was grass. He didn’t have sight of the road so he thought it wasn’t there.

My favorite part of the story came at the very end…. My friend was on the way to the mall with Colton and his mom and he…

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Biking for a World Free MS | Multiple experienceS

Why We Want to Create a World Free of MS 9! years ago, when I said I wanted to ride 30 Miles for an MS Bikeathon, my step-but-real sister Jamie said “I…

Source: Biking for a World Free MS | Multiple experienceS

Football, Food, and Fibromyalgia: Finding Joy In The Simple Things

Reclaiming HOPE

Football, Food, And Fibromyalgia: Finding Joy In The Simple Things, https://reclaiminghope.blogSo yesterday was the official start of football season in our house. I think it technically started last Thursday, but we only watch the games when one of our teams is playing. We have a divided household (I’m a Panthers fan, hubby’s a Giants fan) so when either team is playing, you can find us in front of the TV rooting for whoever’s team is playing. It only gets ugly if they play each other. 😂

Whenever we have a game, I make some kind of snacks. Yesterday it was simple — I put some wings in the air fryer then tossed them in sauce when they came out, and made cold spinach dip with veggies. Sometimes I cook something that’s a little more labor-intensive, but it’s not really what we’re eating or even the football game that’s important. What’s important is that we’re able to spend some time together…

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Weight, Multiple Sclerosis and me | Multiple experienceS

I had my physical yesterday and brought up my favorite topic, weight. Once again I put on a couple of pounds. This has been a very frustrating year for me when it came to weight. My doctor finally…

Source: Weight, Multiple Sclerosis and me | Multiple experienceS

Medical news today article about MS ‘mediator of the disease’ | Multiple experienceS

Interesting article in medical news today. https://www.medicalnewstoday.com/articles/323071.php?utm_medium=gplus&utm_source=dlvr.it Brain inflammation is a marker of multiple sclerosis…

Source: Medical news today article about MS ‘mediator of the disease’ | Multiple experienceS

Intermittent fasting 2 months later | Multiple experienceS

So I’m still doing intermittent fasting. In case you don’t know, this site offers a great beginners guide to fasting https://www.healthline.com/nutrition/intermittent-fasting-guide#section3. For me I…

Source: Intermittent fasting 2 months later | Multiple experienceS

3 adoptive/foster siblings have resurfaced and I don’t know what or how to feel.

Lifting Taboos

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On one hand, I believe that they are family because we were raised together. I love them deeply from the bottom of my heart. They are really all I know in regards to siblings.

We ate together, we celebrated birthdays together, we even shared a room together, catching each other’s dreams between REM cycle and wake.

When my incontinence was bad, I used to sneak into bed with my sister who is younger than me, and she would share her blankets with me. I don’t know if she will ever know how much that meant to me. Or how much it means to me now. I feel we had a bond.

I used to teach the other two just about life since I was the “older” one. They looked up to me. And then things changed.

We grew up.

We created our own memories, or blocked out things that were…

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Product Review – The Fay Farm Soap and Muscle Rub

Being Lydia!

“I have been given these products as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. “

When I was selected for The Fay Farm review and able to choose two items from their vast product lines, I chose carefully. I wanted products that might make a difference in my life and in the lives of anyone who would read this review.

I ended up choosing the Warming Muscle Rub and Healing Hemp Goat Milk Soap. Now the muscle rub is probably an obvious choice because I have very sore muscles. The soap might not be such as popular choice; however, I picked it for the sole reason that I wash my hands a lot and they get very sore and stiff with regular…

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Parking spot saga continued | Multiple experienceS

I was advised to send a letter to the building’s management company and board president. I simply asked them to reconsider NOT revoking my parking spot and I cited the law which governs my “reasonable…

Source: Parking spot saga continued | Multiple experienceS