Danny’s World: I’m Thinking About Acupuncture

Treatment by acupuncture

Yesterday a friend recommended I try acupuncture for my shoulder and for helping me sleep better.  I am strongly considering it, but have always thought of it as a bit “quacky”. Anyone every tried it?

Cog Fog and Brain Zaps?!

Tripping Through Treacle

I continue to be off work for the time being, awaiting my Access to Workreport regarding adaptations and aids that may support me to remain in work. All this time off has done the world of good for my MS, I have to say. Unfortunately, I can’t say that my symptoms have magically disappeared, but Ihavefound them a lot easier to manage, as I have had the time to rest, sleep and stretch as much as my body needs to. Whether it is because I have had more time on my hands to think, or because they have been changing, I am unsure, but I have been much more aware of my symptoms over recent months.

I have writtenbeforeabout how my MS affects me, both physically and psychologically. Over the past year, since taking up blogging, I have had the opportunity to make new ‘MS…

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Dear Santa

MSnubutterflies

I never have a Christmas wish list. There’s not really anything I want. I already have everything. All of the meaningful things in life. Two beautiful kids, a loving man, and the best sister. Parents that love me, friends, and a roof over my head. That’s all I need.

Gifts have never been on my priority list. Material things are just things. So when asked what I want for Christmas I usually say nothing or I don’t know. What could I possibly want?

A new leg, a new eye, not to walk like a drunk. Just kidding!

A couple nights ago and like most nights I was unable to sleep. Thanks again MS…lol. I don’t want to keep anyone up with lights or the TV so just like every other night I have nothing better to do but entertain myself with thought. A traffic jam in my brain. Yes I…

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Danny’s World: MS Can’t Hold Me Down-Obstacles Are Designed To Be Overcome

I know a lot of my readers suffer from chronic pain and I try to be an example of how to fight back.  Today I went for a quick walk.  I didn’t want to and my body yelled at me every step of the way, but I know I have to do it.  I look at exercise like this…if I don’t force my body to move, then MS wins.  I know a lot of you don’t exercise because you have told me so.  You have said it hurts too bad.  You have said you are too tired.  I get it.

I almost had to call Evelina to come and get me, but I didn’t.  I willed myself to finish what I started because in the long run it will benefit me more than sitting around doing nothing.  Do you think I want to?  No, I would rather sit and do nothing.

To those who tell me they cannot I would challenge you to begin thinking about what you can do instead of what you cannot do.  If you can only walk to the end of the driveway then do so.  If you can do arm lifts from your chair, then do so.  If you can swim in the pool, then do so.  Do what you can do, but don’t settle for doing nothing.

And it begins by putting one foot in front of the other.

Danny’s World: Out Sick Today

When I woke up this morning one of the things I wasn’t excited about was the pain and burning in my legs and hips.  Sometimes MS rears its ugly head so it looks like I’m staying home with this little fella today.

Not too familiar with MS?  Here’s an infographic to explain!

Image result for multiple sclerosis symptoms infographic

 

Symptoms: fatigue, numbness, vision problems, muscle spasms, mobility issues, pain, depression, anxiety, etc.

Do I Know You

MSnubutterflies

After an 11 day stay in the hospital, numerous MRI’s, every test known to man, and a lumbar puncture I was finally able to go home.

I was still having difficulty walking. Every step was like the first. I imagined this being what a baby felt like taking his/her first steps. I was actually telling myself ok leg move forward. As if telling my leg would make it go. I could take a couple steps and stop. My brain just not able to make a connection with my body. I walked sideways and backwards. I was happy just to move but I wondered if I would ever make it to my destination. Which was only about 20 steps to the restroom.

My hands were much the same. Shaking and forget picking anything up or holding it. At times my hands were stuck or drawn up. Eating or doing anything with…

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Life Update: Symptoms, Work, Home

Tripping Through Treacle

It’s been a couple of weeks since my last post… I seem to have lost a bit of my blogging ‘mojo’, so to speak.  This is ironic, as I have a bit more time at the moment to blog due to being medically signed off work (as my Multiple Sclerosis symptoms are making it a struggle).  I’ve been dealing for some time now with high levels of fatigue and mobility difficulties (it is exhausting constantly feeling like you have a drag a heavy lump around, when it is actually just your leg).  Somewhat unsurprisingly I guess, being off work has not lessened my MS symptoms… it has just meant that I am able to adjust my lifestyle and plan my days more to accommodate them.  For me, this means taking a daily nap  – I can guarantee that this will make me feel somewhat better and more awake for…

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Noise

HarsH ReaLiTy

So much noise surrounds me.

I look up to a world of chatter. Of flashing screens and enticing things. Questions bombard me until I am a question mark. Demands and needs of others shower me, but it is not my desire to feel the rain. I do not disdain the world, but I fold inside to turn off the outside.

I look down.

I look upon my world, the world to me. On a plate just the right size, no more than I can handle. I bite off the pieces I care about, as I choose to care about them. The world is mine, I am not the world’s. I keep it as simple as controlling what I see. What I view and what I care about. I control me.

-Opinionated Man

44.1

@smokendust


I write a single thought before it is forgotten. Before it becomes another afterthought.

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I have issues

I have issues on Multiple experienceS | My daughter stepped on the scale and was 5-6 pounds lighter. My daughter, who is normal and not obsessed with the…

Source: I have issues

Chronic Pain, Heal Thyself?

Being Lydia!

Daily Prompt – Heal

ChronicPainThe word “heal” can take on a whole different meaning when you have a chronic illness.

I remember the first thing they told us at my pain management program was “We are not here to take your pain away. If you could be healed from it, you wouldn’t be here.” The words hit hard, but we all knew it was true. We were there to learn how to live with our symptoms the best way possible.

As a Christian, I believe the Lord can heal anyone. And this isn’t about faith healings, just that God is in control of everything in my life.

So do these two things contradict for me? No, not at all. When people say they are praying for God to heal me, I say for them to pray for God’s will. He never lets anything happen without reason and I believe I…

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