Weight, Multiple Sclerosis and me | Multiple experienceS

I had my physical yesterday and brought up my favorite topic, weight. Once again I put on a couple of pounds. This has been a very frustrating year for me when it came to weight. My doctor finally…

Source: Weight, Multiple Sclerosis and me | Multiple experienceS

Fit by 50 – Week 45: You Raise Me Up

The Purple Almond

This one will be brief. I just wanted to give an update and thank all of your for your support.

The reason for the brief post?

I’m finished with my current course, and I’d like to catch up on other things, I tend to let slide, when I’m taking a course. I’m at least 2 weeks behind on comments. I’d like to apologize for any delay in replies. I’m hoping to reply over the next few days. I’m even farther behind on blog reading. Hopefully, I’ll be catching up with that next week. I’m also behind on emails. I’ve gotten a few requests for guest posts on my blog, and I need to reply to these individuals. Not to mention, all of the things I need to do around my house!

Weigh in up date:

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This is my least favorite part, as I hate weighing myself, because it’s usually quite…

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I Cannot Get This One Vision Out of My Head…

Danny

I Cannot Get This One Vision Out of My Head…

The 9/11 remembrance ceremonies always make me cry.   I always feel those same emotions I felt back on that Tuesday morning way back when.

There is this thought that has always stuck with me and it is the idea that the first responders were running up the stairs of that building while citizens were running as fast as they could away from the danger.  I that moment when they should have been following their survival instinct they did the exact opposite and ran to help.

And most of them were climbing the stairs to their inevitable death.  They didn’t know they were going to die, but I suspect many of them sensed this event was different and the level of danger must have felt different.

As they climbed the stairs, many on the floors above the impact zone were jumping to their deaths.  Many took one last deep breath of smoke to commit suicide instead of burning alive.  All the while they climbed.  Step after step, floor after floor, they climbed.

They didn’t know what they would encounter when they arrived on those floors.  They didn’t know how many people were already dead.  They didn’t even know if there was anything they could actually do to help, yet they climbed.

The thought that these men and women climbed those stairs passing people who were trying to escape haunts me.  I can feel those emotions and I hate it.

Each year I remind myself of those men and women who climbed slowly to their deaths carrying equipment, oxygen tanks and bags of cutting tools.

They ran into danger while normal people were running away.

I will never, ever forget.

Danny

BODY SHAMING, OUR NEW ENTERTAINMENT!

Candles Online

I remember watching this famous comedy show (The Kapil Sharma Show) on television.  It was all grand and pompous with celebrities adding to the glitter.  The host had an impeccable comic timing but one thing that never got down well with me (and seriously who cares 😀).  The host of the show would continuously take a dig at the fellow artists’ appearance. Calling them names like Fatso, Buffalo, hot air balloon, chimpanzee and what not. And he successfully managed to evoke gags from everyone present in the studio and those watching the Idiot box.  How sensible was that is my reservation?  And sadly bullying in the name of comedy or entertainment isn’t reserved for one odd show.  It’s omnipresent almost everywhere.

Movies, Tele serials, advertisements, social media – whatever the form of media or stage it is, body shaming is more and more increasingly used as an entertainment and a marketing…

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I Struggled This Week and I’m Not Sure Why

Danny

I Struggled This Week and I’m Not Sure Why…

My company instituted a travel ban for all non-essential trips.  This happens occasionally as we draw closer to the end of a quarter so it wasn’t exactly a surprise and it has given me some type to recuperate.

But this week I was able to travel and I spent time in 2 different cities.  The odd thing is that I was out of rhythm a bit and didn’t sleep well, which means my days felt a bit longer.  Yesterday I was back in my hotel room around 4:30 pm and hopped in bed and never moved!

If you have ever spent time traveling you understand how incredibly important a good night’s sleep is and how lack of sleep can impact your focus tremendously.  The other thing that I find important for me is to have a routine so that I can build a sense of normalcy.  Checking in and out of several hotels each week can feel like you are caught up in a tornado at times and having a solid routine helps me feel grounded.

With that said I powered through and now I am home for a few days before I pack up again and hit the road.  I love being home with Evelina and Bentley and there is nothing that could ever replace the feel of home and my own pillows!

I don’t have any lessons or deep thoughts for this week except to encourage you to tell those in your life how much you love them.  I had a high school friend die last week from complications from a “routine” gall bladder removal.  She was only 46 years old.

I cannot imagine what her husband and kids are going through.  Have a wonderful Friday my friends.

Danny

Caution, Your Actions Can Hit You Like a Boomerang!

Featured

Danny

Caution, Your Actions Can Hit You Like a Boomerang

A few years back Evelina worked part-time for this furniture store in Charlotte.  I was operating my vintage furniture business then and this guy (we will call him John) was one of my clients.  He mentioned to me that he needed reliable help selling in the store so I recommended Evelina.  It was a great part-time job for her while she finished law school and he paid her commission on sales which was really nice.

But as Evelina became more involved in his business she learned some things about his business practices which made us both hesitant.  First, he was not paying taxes.  Second, he was paying all of his employees under-the-table wages.  And, third, his store was not up to code for some of the painting and varnishing work being conducted.

At any rate the guy turned out to be someone we didn’t want to associate so Evelina quit and I stopped selling him furniture.  Which at the time was a big deal as he was my largest buyer, sometimes buying 30 pieces of furniture per month.  But for us the decision was an easy one.  Of course he refused to give Evelina her final paycheck and we didn’t choose to fight the battle, just wanted him out of our lives.

I tell you this because yesterday I got curious and looked him up on Facebook.  What I found didn’t surprise me.  His FB business page was shut down and as of July he was out of business.  Several local television news channels had run stories on him because he closed his doors while owing a lot of people money for inventory and owing customers money and product.

We filed a complaint years ago with the local tax office explaining to them that he was not paying taxes, but nothing was ever done.  I was a bit annoyed at this because I wanted vindication.  I wanted bad things to happen to this guy.  I know I’m not supposed to think like that, but I was mad and I’m being honest.

Now his actions have come around and hit him square in the forehead like a perfectly thrown boomerang!  He is being investigated by the Department of Justice which was a huge shock to me and lets me know he was doing some pretty shady things to get in that much trouble.

It just goes to show that it is better to conduct yourself with integrity than to cut corners and treat people poorly.  I hope he ends up in jail because he deserves to serve time.

Danny

When You Know the Right Thing To Do, But You Don’t…

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Danny

When You Know the Right Thing To Do, But You Don’t…

We have all been in a situation where we are trying to make a decision or a friend asks for advice and the right choice is obvious.  Often times the right thing to do is right in front of us we just don’t want to admit it or the right choice means going down a difficult road.  This happens often in sales and usually has something to do with us screwing something up and we have to call the client and admit our mistake.  Some reps want to hide details or even pass along the blame to a “corporate” mistake.

Doing the right thing should always be the first choice.  It isn’t always the easiest route and it isn’t always the most comfortable choice, but it should always be the choice.  When you know the right thing to do but you don’t do it then you bring in a whole new set of issues and problems.  It’s almost like opening Pandora’s box.  Then once the box is open you realize it would have been easier to just do the right thing from the beginning.

So here’s my policy…always do the right thing no matter what.  People will have more respect for you in the end.

Danny

I Reached An Important Goal Yesterday!

Danny

I reached an important goal yesterday…

If you have followed my blog for any length of time you know a few things about me.  First, I am goal driven.  Second, I try my best to live as healthy a lifestyle as I can.  And, lastly, I don’t like making excuses.  As it relates to the healthy lifestyle part of my life I reached a significant goal yesterday.

I weighed in at 179.8 pounds before September 1st which was a goal I set for myself back in July.  I wanted to break 180 before 9/1 and now I’ve set a new goal of breaking 175 by October 1st.

I am proud of myself, which doesn’t happen often, for having reached this goal.  Ultimately I want to weigh around 165 lbs which is what my doctor has said is my ideal weight.  I will eventually get there.

For now I am going to bask in the glory of achievement!

Hope you have an exciting Friday!

Danny

I’m shrinking and it feels so good!

Therapy Bits

youll never believe it! clothes i couldnt get into a few weeks ago, im getting into them now. It means I’m getting smaller, yay!
I have a few new dress tops, and a new coat that my aunt gave me! she gave me this coat before she died, and it didnt tie up properly on me, so i couldnt wear it. but now i can!
im thrilled! it really makes all the hard work of losing weight so worth it!
I am on a high right now! I have been motivated and this spurs me on to continue on the journey!
carol anne

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My Daily Observation – An Update: 2/3/18

It has been quite a while since I have given an update on my life living with MS so I thought I’d share how things are going.  I know for most of your this type of update does impact you, but I do have followers who live with the disease and I want to encourage and support them in any way I can.

Danny's iphone 696

My first day hooked up – 2011

Danny's iphone 698

The infusion happened over 5 days and they leave this in your arm…

Danny's iphone 700

Finally leaving the hospital – 2011

I have an appointment with the neurologist at the end of March to follow-up on a new medication I am beginning in April.  The medication is called Ocrevus and is an infusion I’ll take every six months in the hospital or doctor’s office.  The initial treatment is administered in two sessions, two weeks apart. At each of these sessions, I will receive 300 mg of Ocrevus over an at least 2.5-hour infusion time.

All following infusions are given as a single 600 mg infusion, lasting for at least three hours, every six months. If I have any ongoing infection, the treatment will be delayed until the infection is gone, then the next dose is rescheduled for six months after the last.

This is quite an advancement because the last time I took an infusion it was Solumedrol IV and I had to the infusion at the hospital for 5 straight days every 6 months or so.

As for my symptoms, they are creeping up on me.  Each day I notice something new and it can be a little difficult getting around, but not impossible.  Honestly, I bite the bullet so to speak and put on a good face in public, but most of the time I am experiencing a relatively high level of pain when I walk.  I don’t really say much to anyone except Evelina simply because everybody has problems and I hate making excuses.

Lately I’ve had issues with my right hip and it makes me wonder if the Solumedrol has something to do with the pain.  One of the most frustrating things of dealing with MS is I never know what is medication side effects and what is a MS symptom.

The issues with my hands still exists and like all other pain I am accustomed to hurting so I just keep my mouth shut and keep trudging ahead.

I have noticed lately that I am forgetting things a little more; absent-minded is how I describe the mind issue.   I’m not sure if it is because I’ve been more distracted lately or if it is a cognitive issue related to MS so I’ll keep an eye on it and report to my doctor in March.

Other than that all is well and for the most part I am focused on what I can do instead of what I cannot.  I learned a long time ago that focusing on what MS takes can be depressing and I make certain to keep my mind focused on finding things I can do and then DO those things until I can no longer.  Then I’ll find something new I can do and move forward positively from new adventure to new adventure.

This fight is a marathon not a sprint and I try to approach it as getting better every single day.   Eating better every day.  Walking the dog every day.  Exercising my mind every day.

Always focusing on the positive….the race to the top begins every morning when I wake up.

Danny